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Family Voices Resources
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- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
- Summer 2021
- Summer 2022
- Winter 2018
- Winter 2019
- Winter 2020
- Winter 2021
- Winter 2022
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- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Child’s Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mama’s Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
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Long-Term Supports
- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
- Children’s Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Recursos en español
Family Voices hojas informativas y boletines en español
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- Su vos cuenta #4: Participación en el Comité Asesor del Programa de Opciones Comunitarias para Niños de Wisconsin
- Su voz cuenta #1: Introducción al liderazgo familiar
- Su voz cuenta #2: Cómo ser un defensor eficaz
- Su voz cuenta #3: Las familias necesitan estar presentes en la mesa
- Su voz cuenta #5: Únase a un comité, Ideas para las familias
- Su voz cuenta #6: Supere barreras y participe
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- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducción a Una Transición Integral Para Jóvenes y Familias
- WITPP 2: Jóvenes participando e involucrándose plenamente con su comunidad
- WITPP 3: Transición para jóvenes con necesidades de salud mental
- WITPP 4: Planificación para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificación para la transición de cuidados de salud
- WITPP 8: Planificación financiera para jóvenes con discapacidades
- WITPP 9: Exploración del trabajo independiente para jóvenes con discapacidades
- Apelación de un rechazo de Medicaid o BadgerCare
- Asociándose con el proveedor de su hijo
- Cobertura de Medicaid HMO para pañales
- COVID y la Seguridad Escolar
- Enfermera privada: Un servicio cubierto por Medicaid
- Organizaciones de Wisconsin que ofrecen recursos para familias con niños y jóvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niños con Discapacidades o Necesidades Médicas Complejas
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Child’s Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
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List of Fact Sheets
Questions for Your Private Health Plan:
Preparing for the Cost of Health Care
Reviewed July 2025
If your child needs to see a new medical provider, start new medications, treatment or therapy service, and you are relying on your family’s private health insurance for payment, it is important to prepare for the potential cost. These tips and ideas will help you be ready, so you are not surprised by large bills, or unforeseen out-of-pocket costs.
Where to Start
- Read your health plan’s Summary of Benefits and Coverage (SBC). This is the document explaining the covered services under your plan. It details the cost of care, including possible out-of- pocket costs like co-payments, co-insurance and deductibles. This document is not the marketing brochure you might get from your employer. It is the contract between you and your insurance company.
- Check your insurer’s website for information. Many insurance companies offer a member portal where you can find details about your coverage, find in-network providers, and some sites will let you search for specific medical procedures or medications to see if they’re covered.
- Call Member Services to ask if a treatment or service will be covered. Their phone number will be on the back of your insurance card.
Before calling or getting online, have the following information ready:
- Your child’s and/or family’s member number or plan identification number
- The name of the medical provider and their contact information, including the clinic address and phone number
- The number of visits requested, the name of the medication, or other specific details about the medical services recommended
- Check the Formulary: A formulary is a list of prescription drugs covered by your insurance plan. Insurance companies categorize these into tiers based on cost. Your co-pay will vary depending on which tier a medication falls into. If your child’s medical provider is recommending a new medication that does not appear on the formulary, contact the clinic to see if a similar medication, or a generic version, that is on the list can be substituted.
What to Know about Deductibles
A deductible is the amount you owe for covered health care services before your insurance begins to pay. For example, if your deductible is $1,000, your plan won’t usually cover any costs until you’ve met your $1,000 deductible, or paid $1,000 out of your own pocket, for covered services. The deductible may not be applied to all services, including preventive health services like immunizations and well-child visits.
Know the Difference Between Co-Pay and Co-Insurance
A co-payment (or co-pay) is an amount you may be required to pay as a share of the cost for a medical service or supply, like a doctor’s visit or prescription. A co-pay is often a set amount. For example, you might pay $20 each time you visit your doctor or pick up a prescription.
Co-insurance is the amount you may be required to pay as your share of the cost for services after you pay any deductibles and is usually a percent of the overall cost. For example, you may be responsible for paying 20% of the bill for a doctor’s appointment.
Tip For Families
Carefully review all the charges when you receive bills from a medical provider. Did they remember to submit the charges to all insurance providers, including Wisconsin Medicaid, if your child is enrolled? Did your child receive the services that were billed to you? Call the clinic or hospital billing office if you have questions or concerns about any charges. Also, keep in mind that an explanation of benefits (EOB) sent from your health plan is not a bill, but can be helpful in understanding what was covered, what was not, and why.
Out-of-Pocket Maximum
An out-of-pocket maximum or limit is the most you may be asked to pay during a year (1 policy period) before your health plan starts to pay 100% for covered services. This limit applies to new demands for deductibles, co-insurance, co-payments, or similar charges. This limit does not usually apply to premiums (the amount you pay each month to have the coverage), services from non-network providers, or other out-of-network cost sharing.
Why Choosing an In-Network or Out-of-Network Provider Matters
A network is a group of providers that your insurance company or health plan works with most often. Staying within the network can help with coordination of medical care and reduce costs for the insurance company. However, many health plans will either partly or fully cover the cost of seeing a non-network provider, if a similar provider or specialist is not available within their network.
Referral and Prior Authorization
A referral is an order from your primary care doctor to see a specialist or get certain medical services. Many health plans require a referral before they cover the cost of care from any provider other than your primary care doctor.
A Prior Authorization (PA) Request is an approval process used by health plans and Wisconsin Medicaid to decide if the cost of a medical service, device or treatment will be covered. It’s sometimes called an authorization request or prior approval. In most cases, health plans and Medicaid approve PA requests if they are found to be medically necessary. To learn more about PAs and medical necessity read Family Voices fact sheet on Insurance Prior Authorizations.
Learn more: healthcare.gov/choose-a-plan/your-total-costs
Who Can Help:
ABC for Health is a public interest law firm that works to ensure health care access for children and families. Contact ABC for Health if you have concerns about a medical bill or your health plan is denying coverage for a medical service – safetyweb.org or (608)261-6939.
Covering Wisconsin is the state’s licensed health insurance navigator organization. Staff members are available to help individuals and families find affordable health coverage and online resources explain how to make the most of health care benefits – coveringwi.org or (877)942-6837.
Wisconsin’s Offie of the Commissioner of Insurance is the state agency that regulates insurance companies offering plans to Wisconsin residents. You can contact OCI to ask questions or file a complaint. OCI also has resources for consumers like listings of agents, available plans and tips for saving money on insurance coverage.
INFORMATION AND RESOURCES
Wisconsin Wayfinder: Children’s Resource Network, 877-WiscWay (877-947-2929): Wisconsin Wayfinder offers families one name and phone number to find services for children with special health care needs. Wayfinder connects you to a resource guide at one of the five Children’s Resource Centers in your area.
Family Voices of Wisconsin, 2019© | familyvoiceswi.org
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