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Family Voices Resources
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- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
- Summer 2021
- Summer 2022
- Winter 2018
- Winter 2019
- Winter 2020
- Winter 2021
- Winter 2022
- Show all ( 13 ) Collapse
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- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Childโs Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mamaโs Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
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Long-Term Supports
- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
- Childrenโs Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Recursos en espaรฑol
Family Voices hojas informativas y boletines en espaรฑol
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- Su vos cuenta #4: Participaciรณn en el Comitรฉ Asesor del Programa de Opciones Comunitarias para Niรฑos de Wisconsin
- Su voz cuenta #1: Introducciรณn al liderazgo familiar
- Su voz cuenta #2: Cรณmo ser un defensor eficaz
- Su voz cuenta #3: Las familias necesitan estar presentes en la mesa
- Su voz cuenta #5: รnase a un comitรฉ, Ideas para las familias
- Su voz cuenta #6: Supere barreras y participe
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- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducciรณn a Una Transiciรณn Integral Para Jรณvenes y Familias
- WITPP 2: Jรณvenes participando e involucrรกndose plenamente con su comunidad
- WITPP 3: Transiciรณn para jรณvenes con necesidades de salud mental
- WITPP 4: Planificaciรณn para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificaciรณn para la transiciรณn de cuidados de salud
- WITPP 8: Planificaciรณn financiera para jรณvenes con discapacidades
- WITPP 9: Exploraciรณn del trabajo independiente para jรณvenes con discapacidades
- Apelaciรณn de un rechazo de Medicaid o BadgerCare
- Asociรกndose con el proveedor de su hijo
- Cobertura de Medicaid HMO para paรฑales
- COVID y la Seguridad Escolar
- Enfermera privada: Un servicio cubierto por Medicaid
- Organizaciones de Wisconsin que ofrecen recursos para familias con niรฑos y jรณvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niรฑos con Discapacidades o Necesidades Mรฉdicas Complejas
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Childโs Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
- Show all ( 3 ) Collapse
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List of Fact Sheets

Preparing for Emergencies
Reviewed September 2025
It is important that we take steps to prepare our families to stay healthy and safe during any emergency. This may be a natural disaster, like a tornado, wildfire or flood, a long-term power outage, or a health emergency like the COVID pandemic. No matter the situation, you can get yourself ready to meet the challenge.
Be Informed
Know where to get the most current and reliable information about the emergency as it approaches, arrives and leaves so you do not have to rely on rumor.
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- Federal government websites like gov, and Centers for Disease Controlโs emergency preparedness offer tips, resources and tools to help your family prepare.
- For weather emergencies, sign up for a weather app that has emergency alerts for your area. Another smartphone tool is Wireless Emergency Alerts (WEA). WEAs are sent by authorized government agencies to your phone during an emergency.
- Get information about local or regional emergency and crisis resources. Organizations like your local Red Cross or county government will know where you can find assistance after a disaster.
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Make a Plan
Now is the time to start protecting the people and things that are most important to you by creating a plan for emergencies. Share your plan with your family and your childโs caregivers. This is easily done by taking a picture of the final version on your phone as well as your other devices and keep hardcopies in case there is a power outage in your area.
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- List Contact Information: including phone numbers, email and street addresses, extended family members, your childโs doctors and other medical providers, preferred hospitals and school personnel.
- Create a Care Plan: This document has your childโs medications, doses and time taken, equipment and necessary supplies, and the name and phone numbers of any medical suppliers.
- Make an ID Card: For younger children, children who are non-speaking, or unable to communicate, make an identification card with their name, parentโs name and cell phone numbers. Then be sure to put a copy in their backpack so itโs always close. You can also buy a bracelet or other wearable device with this identification.
- Decide on a Place to Meet: In case you get separated, discuss a place to meet and a person to call. For example, in case of a house fire, all family members know to evacuate the house and meet at the end of the driveway and call grandma if you don’t see everyone.
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Tip for Families
If your child is enrolled in Wisconsinโs Childrenโs Long-Term Support Program (CLTS), talk with your Support and Service Coordinator about emergency planning. CLTS may be able to cover the cost of equipment, so your family is prepared. One example is having CLTS cover the cost of a portable generator if a child needs electricity for a medical device or specialized equipment due to their health condition.
Build a Kit or โGo Bagโ
Start by making a list of the essential items you will need for 5-7 days. Then build your emergencies kit. Some things you might want to include:
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- Bottled water
- Non-perishable food
- Enough cash to cover expenses
- A battery-operated radio
- A flashlight with extra batteries
- A first aid kit
- Medications for your child and other family members (check doses and medication changes when you’re updating with the new season)
- Copies of financial information, like bank accounts, credit cards and health insurance information
- Extra clothing including socks, underwear, a warm jacket and a blanket (check sizes with the season change to see if these items still fit)
- Supplies for your childโs special equipment like extra syringes and gloves
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Tip For Families
Make a list of emergency phone numbers and post it in a visible place in your house. Make sure your children know when โand when NOTโto call 911.
Share and Connect
- Visit your local fire department and police station with your children. This will help your children know who to look for in case of an emergency and learn that these areย trusted adults.
- In case another person needs to care for your child, be sure to have a care plan that details their care needs, including medications, medical providers, necessary documents, diet and sleep needs. Then share this care plan with the family members, caregivers and providers who may need to step in and care for your child.
Tip for Families
Share information about your childโs condition with local first responders so they are familiar with their unique needs. Most local fire departments welcome this information to help them be better prepared if they are called to your home in an emergency.
Learn More
- Caring for Children and Youth with Special Health Care Needs in an Emergency ย ย
- gov/disability
- American Academy of Pediatrics, Disasters and Your Family: Why to Be Prepared
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INFORMATION AND RESOURCES
Wisconsin Wayfinder: Childrenโs Resource Network,ย 877-WiscWayย (877-947-2929):ย Wisconsin Wayfinder offers families one name andย phoneย number to find services for children with special health care needs. Wayfinderย connects youย to a resource guideย at one of the five Childrenโs Resource Centersย in your area.
ย If you need this fact sheet as a pdf or other format contact Lynn atย lynn@fvofwi.org.
Family Voices of Wisconsin,ย 2020ยฉย ย |ย familyvoiceswi.org
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