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Family Voices Resources
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- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Newsletter: Issue 1, 2025
- Newsletter: Issue 2, 2025
- Newsletter: Issue 3, 2025
- Newsletter: Issue 4, 2025
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
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- Winter 2018
- Winter 2019
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- Winter 2021
- Winter 2022
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- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. Whatโs Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Childโs Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mamaโs Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
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Long-Term Supports
- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. Whatโs Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
- Childrenโs Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Recursos en espaรฑol
Family Voices hojas informativas y boletines en espaรฑol
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- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducciรณn a Una Transiciรณn Integral Para Jรณvenes y Familias
- WITPP 2: Jรณvenes participando e involucrรกndose plenamente con su comunidad
- WITPP 3: Transiciรณn para jรณvenes con necesidades de salud mental
- WITPP 4: Planificaciรณn para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificaciรณn para la transiciรณn de cuidados de salud
- WITPP 8: Planificaciรณn financiera para jรณvenes con discapacidades
- WITPP 9: Exploraciรณn del trabajo independiente para jรณvenes con discapacidades
- Apelaciรณn de un rechazo de Medicaid o BadgerCare
- Asociรกndose con el proveedor de su hijo
- Cobertura de Medicaid HMO para paรฑales
- COVID y la Seguridad Escolar
- Organizaciones de Wisconsin que ofrecen recursos para familias con niรฑos y jรณvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niรฑos con Discapacidades o Necesidades Mรฉdicas Complejas
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Childโs Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
- Show all ( 3 ) Collapse
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List of Fact Sheets
Private Duty Nursing: A Medicaid Covered Service
Reviewed September 2025
Skilled nursing services at home allow children with complex medical needs to get the care they need safely in a familiar and loving environment. For children covered by Wisconsin Medicaid including Badgercare Plus, Katie Beckett Medicaid or SSI Medicaid, their ForwardHealth card may cover the cost of having a nurse come into their home. This benefit is called private duty nursing (PDN) services.
Qualifying for PDN Services
If your child needs at least eight hours of skilled nursing services in a 24-hour period, they may qualify for PDN services. If your child has less than eight hours of nursing-needs each day they may qualify for another service, called intermittent nursing care but they likely will not qualify for PDN services. When youโre figuring out if your child qualifies for PDN think about the time it takes for all the skilled nursing care they need each day. Your childโs medical providers may be able to help you in this process. ย
Below are several examples of what DHS considers to be a skilled nursing-level service:
- Tracheostomy management
- Continuous infusions or oxygen that will result in hospitalization if stopped for more than one hour
- Giving medications or nutrition through a central line
- Frequent suctioning to maintain their airway
- Mechanical Ventilation (ventilator or CPAP)
- Application of dressing involving prescription medications and aseptic techniques
Care that does not qualify as skilled level nursing under Wisconsin Medicaid rules:
- Gastrostomy feedings (include the time needed to begin, disconnect, and flush – not the entire time the feeding is dispensing)
- Managing chronic vomiting
- Managing common or non-significant wounds
For more information on this topic read the ForwardHealth handbook section, qualifying for private duty nursing.
Make Sure Your PDN Services are Approved by Wisconsin Medicaid
While some private insurance plans will pay for PDN, Wisconsin Medicaid will only pay for the service if it is provided by a Medicaid-certified home health agency or a Medicaid-approved nurse. It is important to confirm that the agency or individual nurse you work with is authorized to bill Medicaid, so that your childโs ForwardHealth card fully covers the cost of these services.
Before services begin, youโll need to contact an agency or an independent nurse. They will develop a plan of care and submit a Prior Authorization (PA) request to Wisconsin Medicaid that must be approved before services can start.
Tip for Familiesย
We know the shortage of direct care providers is impacting Wisconsin familiesโ ability to find private duty nurses. Many agencies cannot hire enough nurses to fill open positions. Talk with other families, your childโs school district nurse and staff at the hospital or health system where your child receives care. They may be able to connect you with an agency or independent nurse. Another option is to find a nurse willing to work with your family who can then take the needed training, complete the required paperwork and become a Medicaid provider.
Getting Started
- Your childโs medical providers may be able to recommend home health agencies or independent nurses. You can also ask your local hospital or one of Wisconsinโs childrenโs hospitals and their complex-care program staff.
- Once you have decided on a PDN provider, they will work with you and your childโs medical providers to develop a care plan. The care plan will include: a medical assessment, medication and treatment orders, treatment goals, what care will be provided, and other related information.
If you are working with an independent nurse, you can make them your childโs Prior Authorization Liaison (PAL). Note that a PALโs time to complete the required paperwork is not covered by Medicaid.
- The PDN provider will also talk with you about your other responsibilities and your family support needs. They will ask about your ability to provide medical care and treatment, your daily schedule including your work hours, school, sleep and the care you need to provide for your other children or family members.
- Once the care plan is completed, the home health agency or PAL will:
- prepare a prior authorization (PA) request,
- have you sign that you have read and approve the care plan and prior authorization request, and,
- submit the PA request and care plan to WI Medicaid for review and approval.
- If Medicaid staff members have questions, they may send the PA request back to the home health agency or PAL for more information or documentation.
- You will then receive a letter from the Department of Health Services letting you know if your request was approved, modified or denied. A PA is modified when less nursing time is approved than was originally requested.
What if PDN Services are Modified or Denied? Your Appeal Rights
Families have the right to appeal denied or modified PDN services. Start by calling the home health agency or independent nurse who submitted the plan of care and PA request. Ask if there are details, additional documents or medical information that may have been left out. If you feel the denial isnโt the right decision, your family can appeal the denial or modification by requesting a fair hearing. This is usually a phone call with an Administrative Law Judge (ALJ) and does not require hiring an attorney. We have more detail about this process in the Family Voices fact sheet on appealing a Medicaid denial, Medicaid: How Do I Appeal a Denial. ย
PDN Outside Your Home
While PDN services are generally provided in your home, if your child spends time each day at school or in other community settings, nursing services can be provided outside your home. However, Medicaid will only cover the cost of nursing services OUTSIDE your home if your child is approved for PDN WITHIN your home and their plan of care authorizes nursing services in other locations, like school. ย
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INFORMATION AND RESOURCES
Wisconsin Wayfinder: Childrenโs Resource Network,ย 877-WiscWayย (877-947-2929):ย Wisconsin Wayfinder offers families one name andย phoneย number to find services for children with special health care needs. Wayfinderย connects youย to a resource guideย at one of the five Childrenโs Resource Centersย in your area.
If you need this fact sheet as a pdf or other format contact Lynn atย lynn@fvofwi.org.
Family Voices of Wisconsin, 2024ยฉย ย |ย ย familyvoiceswi.org
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