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Children’s Long-Term Support Program: Appealing a Denial of Services or Program Eligibility

(#8 of 8 in Series)

Reviewed December 2025

The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.

As a Medicaid-connected program, it’s jointly funded by the federal and state governments but administered at the county level. Families typically work directly with a county agency (or their designated program administrator) to apply for and receive CLTS services.

Appealing a Denial of CLTS Program Eligibility

If your family completed the CLTS Program application, the functional screening and eligibility process, and your child has been determined not eligible, there are steps you can take to appeal the denial.

Before beginning the appeals process, be sure you have read the letter outlining the reason for the denial carefully.

Step 1 

If your child was found to be not functionally eligible, you can ask for another meeting with the screener to review their interpretation, or understanding, of your answers to the functional screen questions. Keep in mind that how the screen is completed and the answers you gave the Support and Service Coordinator (SSC) are key in deciding whether your child is eligible.

Think about how you answered the questions related to your child’s care needs and challenges. This is where many families get hung up. This is a time to be realistic about your child’s limitations. (See Family Voices of Wisconsin Completing a Functional Screen fact sheet for more information.)

If your SSC and you find something that needs to be corrected, the SSC can update and re-submit the functional screen. This could move your child from being ineligible to eligible for the CLTS Program.

Tip for Families

Use your phone to take videos of your child during difficult times to show the screener a realistic view of your child to increase their understanding of any challenges or limitations that are hard to explain or difficult to capture in a sentence.

Step 2

If a meeting with your SSC does not change the eligibility status, and your child is still denied eligibility, within 45 days of the date of the notice families can appeal to the State of Wisconsin’s Division of Hearings and Appeals (DHA). To start this process, visit Request a Hearing for specific instructions.

Note: Families absolutely must be sure to sign and date their request. Many requests are returned to families for missing signatures.

You can also send a letter or write on a copy of the Notice of Action of Denial that you would like to appeal through a fair hearing process, with your signature and date, and mail this request with your name, address and phone number to Division of Hearings and Appeals, PO Box 7875, 53707-7875.

To prepare for an appeal to eligibility for the CLTS Program consider collecting the following

      • Collect medical records to provide more details about your child’s condition. You can reference these details (diagnoses, test results, etc.) when speaking with the Administrative Law Judge.
      • Request letters from your child’s doctors, therapists or community providers and offer to send copies to the judge.

Organizations to Assist Families with Appeals

Denial of a requested item or service

There may be times when an item or service is not approved. There are also times when the quantity of an item requested is reduced. It may take time and effort to appeal, however, it’s important to know that Wisconsin’s CLTS Program has a process to reconsider these denials. Knowing your rights and the steps to take will go a long way toward resolving the issue.

Know Your Rights 

When an item or service is denied, but within the scope of the CLTS program, a notification called a Notice of Adverse Action, is sent to the family. It includes important next steps families can take if they choose, including: 

  • The action that will be taken and why.
  • When the action will be taken.
  • Your rights, including your right to appeal.
  • Timeline to appeal the decision

Steps to Appeal a Denial for a Service or Item

Step 1: Request a meeting with your child’s SSC to review what was denied. We recommend families be open to creative and flexible solutions to the issue the item is intended to help or support. Learning and understanding the reason for the denial or reduction in coverage is helpful to understanding the options that may be covered, and it can offer insights into the possibility of filing an appeal.

Step 2: Review the outcomes that were written into your child’s ISP to ensure the requested item or service supports a goal or outcome that was identified in that plan. Remember, all requested items or services must be supported by the goals and outcomes in the ISP.

Step 3A: If you firmly believe the requested service or item is the best way to meet the stated outcomes, you must begin the appeal process within 45 days of notification of the denial. The appeal process does not require an attorney.

Step 3B: If you are not seeking a change in decision, but would like the county to acknowledge your complaint, filing a grievance with the county could be your next step. A grievance does not seek to change outcome of the decision but is a way for the agency to acknowledge your concerns. Each county’s grievance process is different but can usually be found on the county government website.

Tip for Families

To support your appeal, ask your child’s doctor, therapist, school team or other providers who work closely with your child to send a letter of support to help those reviewing the denial understand why the service is needed.

Step 4: Request a Fair Hearing: Families can seek a hearing from the state of Wisconsin’s Division of Hearings and Appeals. To start this process, visit Request a Hearing for specific instructions.

Note: Families absolutely must be sure to sign and date their request. Many requests are returned to families for missing signatures.

You can also send a letter or write on a copy of the Notice of Action of Denial that you would like to appeal through a fair hearing process, with your signature and date, and mail this request with your name, address and phone number to Division of Hearings and Appeals, PO Box 7875, 53707-7875.

About Verbal Denials: If your child’s SSC tells you a requested service cannot be covered by CLTS, even if you do not have it in writing, this communication – verbal, text, or any other way – is still considered a denial. While having it in writing is best, families can still take steps to appeal the denial.

Fair Hearings

After you submit your Fair Hearing request, you will receive a notice with the date and time of your hearing. Fair Hearings are informal meetings, almost always held over the phone with an Administrative Law Judge. You will be asked to explain your position and the County Waiver Agency will also be able to share theirs. While making your statement, it’s important to be concise, specific and fact-based. Many parents find it helpful to prepare something in writing in advance so they can be thoughtful and well planned in their statement. Family members, friends or other supporters can participate to also address the denial and provide evidence related to why the denial should be overturned. The judge does not usually give their decision at the hearing. It will arrive by postal mail to everyone involved.

Know the County’s Reason for the Denial: Before your hearing, your county CLTS Program will submit an explanation of why the service or support was denied to the judge. This is called a Summary of Action form. Your family should also receive a completed copy of this form so ask for this communication if you didn’t find it in the original mailing. It will help you during your hearing to stay focused on the county’s central reason for denying the request.

If you have questions about the state appeals process, see DOA Contact DHA

Tip for Families

Parents, other family members or your child’s SSC can email DHS, Bureau of Children’s Services technical assistance staff if you have a question at dhsbcstac@dhs.wisconsin.gov.

Resources

The CLTS Program Participant and Family Handbook offers explanations of all topics related to the CLTS Program and where to learn more if your family has questions.

 

  INFORMATION AND RESOURCES

Wisconsin Wayfinder: Children’s Resource Network, 877-WiscWay (877-947-2929): Wisconsin Wayfinder offers families one name and phone number to find services for children with special health care needs. Wayfinder connects you to a resource guide at one of the five Children’s Resource Centers in your area.

 

Do you need a resource in another format or a printed copy? Contact Lynn@fvofwi.org 

Family Voices of Wisconsin, 2020©  |  familyvoiceswi.org

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