Search for answers or browse our resource library.
-
Family Voices Resources
-
-
- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
- Summer 2021
- Summer 2022
- Winter 2018
- Winter 2019
- Winter 2020
- Winter 2021
- Winter 2022
- Show all ( 13 ) Collapse
-
-
-
- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
-
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
-
- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Child’s Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Show all ( 19 ) Collapse
-
-
- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
-
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
-
-
Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mama’s Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
-
Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
-
Family Support
-
- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
-
- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
-
-
Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
-
Long-Term Supports
- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
- Children’s Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
-
Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
-
Mental Health
-
Money Matters
-
Recursos en español
Family Voices hojas informativas y boletines en español
-
-
-
- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducción a Una Transición Integral Para Jóvenes y Familias
- WITPP 2: Jóvenes participando e involucrándose plenamente con su comunidad
- WITPP 3: Transición para jóvenes con necesidades de salud mental
- WITPP 4: Planificación para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificación para la transición de cuidados de salud
- WITPP 8: Planificación financiera para jóvenes con discapacidades
- WITPP 9: Exploración del trabajo independiente para jóvenes con discapacidades
- Apelación de un rechazo de Medicaid o BadgerCare
- Asociándose con el proveedor de su hijo
- Cobertura de Medicaid HMO para pañales
- COVID y la Seguridad Escolar
- Organizaciones de Wisconsin que ofrecen recursos para familias con niños y jóvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niños con Discapacidades o Necesidades Médicas Complejas
-
-
-
Telehealth
-
Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Child’s Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
- Show all ( 3 ) Collapse
-
List of Fact Sheets
Children’s Long-Term Support Program: Appealing a Denial of Services or Program Eligibility
(#8 of 8 in Series)
Reviewed December 2025
The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.
As a Medicaid-connected program, it’s jointly funded by the federal and state governments but administered at the county level. Families typically work directly with a county agency (or their designated program administrator) to apply for and receive CLTS services.
Appealing a Denial of CLTS Program Eligibility
If your family completed the CLTS Program application, the functional screening and eligibility process, and your child has been determined not eligible, there are steps you can take to appeal the denial.
Before beginning the appeals process, be sure you have read the letter outlining the reason for the denial carefully.
Step 1
If your child was found to be not functionally eligible, you can ask for another meeting with the screener to review their interpretation, or understanding, of your answers to the functional screen questions. Keep in mind that how the screen is completed and the answers you gave the Support and Service Coordinator (SSC) are key in deciding whether your child is eligible.
Think about how you answered the questions related to your child’s care needs and challenges. This is where many families get hung up. This is a time to be realistic about your child’s limitations. (See Family Voices of Wisconsin Completing a Functional Screen fact sheet for more information.)
If your SSC and you find something that needs to be corrected, the SSC can update and re-submit the functional screen. This could move your child from being ineligible to eligible for the CLTS Program.
Tip for Families
Use your phone to take videos of your child during difficult times to show the screener a realistic view of your child to increase their understanding of any challenges or limitations that are hard to explain or difficult to capture in a sentence.
Step 2
If a meeting with your SSC does not change the eligibility status, and your child is still denied eligibility, within 45 days of the date of the notice families can appeal to the State of Wisconsin’s Division of Hearings and Appeals (DHA). To start this process, visit Request a Hearing for specific instructions.
Note: Families absolutely must be sure to sign and date their request. Many requests are returned to families for missing signatures.
You can also send a letter or write on a copy of the Notice of Action of Denial that you would like to appeal through a fair hearing process, with your signature and date, and mail this request with your name, address and phone number to Division of Hearings and Appeals, PO Box 7875, 53707-7875.
To prepare for an appeal to eligibility for the CLTS Program consider collecting the following
-
-
- Collect medical records to provide more details about your child’s condition. You can reference these details (diagnoses, test results, etc.) when speaking with the Administrative Law Judge.
- Request letters from your child’s doctors, therapists or community providers and offer to send copies to the judge.
-
Organizations to Assist Families with Appeals
-
-
- Disability Rights Wisconsin, disabilityrightswi.org or (800) 928-8778.
- ABC for Health, safetyweb.org or (800) 585-4222
-
Denial of a requested item or service
There may be times when an item or service is not approved. There are also times when the quantity of an item requested is reduced. It may take time and effort to appeal, however, it’s important to know that Wisconsin’s CLTS Program has a process to reconsider these denials. Knowing your rights and the steps to take will go a long way toward resolving the issue.
Know Your Rights
When an item or service is denied, but within the scope of the CLTS program, a notification called a Notice of Adverse Action, is sent to the family. It includes important next steps families can take if they choose, including:
- The action that will be taken and why.
- When the action will be taken.
- Your rights, including your right to appeal.
- Timeline to appeal the decision
Steps to Appeal a Denial for a Service or Item
Step 1: Request a meeting with your child’s SSC to review what was denied. We recommend families be open to creative and flexible solutions to the issue the item is intended to help or support. Learning and understanding the reason for the denial or reduction in coverage is helpful to understanding the options that may be covered, and it can offer insights into the possibility of filing an appeal.
Step 2: Review the outcomes that were written into your child’s ISP to ensure the requested item or service supports a goal or outcome that was identified in that plan. Remember, all requested items or services must be supported by the goals and outcomes in the ISP.
Step 3A: If you firmly believe the requested service or item is the best way to meet the stated outcomes, you must begin the appeal process within 45 days of notification of the denial. The appeal process does not require an attorney.
Step 3B: If you are not seeking a change in decision, but would like the county to acknowledge your complaint, filing a grievance with the county could be your next step. A grievance does not seek to change outcome of the decision but is a way for the agency to acknowledge your concerns. Each county’s grievance process is different but can usually be found on the county government website.
Tip for Families
To support your appeal, ask your child’s doctor, therapist, school team or other providers who work closely with your child to send a letter of support to help those reviewing the denial understand why the service is needed.
Step 4: Request a Fair Hearing: Families can seek a hearing from the state of Wisconsin’s Division of Hearings and Appeals. To start this process, visit Request a Hearing for specific instructions.
Note: Families absolutely must be sure to sign and date their request. Many requests are returned to families for missing signatures.
You can also send a letter or write on a copy of the Notice of Action of Denial that you would like to appeal through a fair hearing process, with your signature and date, and mail this request with your name, address and phone number to Division of Hearings and Appeals, PO Box 7875, 53707-7875.
About Verbal Denials: If your child’s SSC tells you a requested service cannot be covered by CLTS, even if you do not have it in writing, this communication – verbal, text, or any other way – is still considered a denial. While having it in writing is best, families can still take steps to appeal the denial.
Fair Hearings
After you submit your Fair Hearing request, you will receive a notice with the date and time of your hearing. Fair Hearings are informal meetings, almost always held over the phone with an Administrative Law Judge. You will be asked to explain your position and the County Waiver Agency will also be able to share theirs. While making your statement, it’s important to be concise, specific and fact-based. Many parents find it helpful to prepare something in writing in advance so they can be thoughtful and well planned in their statement. Family members, friends or other supporters can participate to also address the denial and provide evidence related to why the denial should be overturned. The judge does not usually give their decision at the hearing. It will arrive by postal mail to everyone involved.
Know the County’s Reason for the Denial: Before your hearing, your county CLTS Program will submit an explanation of why the service or support was denied to the judge. This is called a Summary of Action form. Your family should also receive a completed copy of this form so ask for this communication if you didn’t find it in the original mailing. It will help you during your hearing to stay focused on the county’s central reason for denying the request.
If you have questions about the state appeals process, see DOA Contact DHA
Tip for Families
Parents, other family members or your child’s SSC can email DHS, Bureau of Children’s Services technical assistance staff if you have a question at dhsbcstac@dhs.wisconsin.gov.
Resources
The CLTS Program Participant and Family Handbook offers explanations of all topics related to the CLTS Program and where to learn more if your family has questions.
INFORMATION AND RESOURCES
Wisconsin Wayfinder: Children’s Resource Network, 877-WiscWay (877-947-2929): Wisconsin Wayfinder offers families one name and phone number to find services for children with special health care needs. Wayfinder connects you to a resource guide at one of the five Children’s Resource Centers in your area.
Do you need a resource in another format or a printed copy? Contact Lynn@fvofwi.org.
Family Voices of Wisconsin, 2020© | familyvoiceswi.org
0 out of 5 stars
| 5 Stars | 0% | |
| 4 Stars | 0% | |
| 3 Stars | 0% | |
| 2 Stars | 0% | |
| 1 Stars | 0% |