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Family Voices Resources
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- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Child’s Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
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Long-Term Supports
- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
- Children’s Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Center for Transition of Adult Health Care
- Creating a Vision for Your Child’s Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Show all ( 3 ) Collapse
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List of Fact Sheets
COVID is still impacting our lives. In Wisconsin, children and adults are getting sick from the virus, but it’s not too late to protect yourself and your child by getting vaccinated. (This includes children who were exposed to COVID.) Medical experts agree that fully vaccinating all children1, including those with special health care needs, is the most effective way to avoid getting seriously ill from COVID.
Know the Facts
- The COVID vaccine for children is safe and effective.
- Children with disabilities are at increased risk for severe illness from COVID.
- There’s no way to know how COVID will affect your child. It can range from mild symptoms to serious illness, or even death.
Many children with disabilities also have underlying medical conditions like lung, heart or kidney disease, a weakened immune system, obesity or diabetes. Research has shown that children with one or more underlying medical conditions are far more likely to get severely ill from COVID.2
Why Might My Child More Easily be Exposed to COVID?
Children may have a harder time avoiding exposure to all viruses, including COVID. Think about these risks for exposure:
- Having more people in close contact with your child means more chances to catch a virus, like the common cold, flu or COVID. For example, if children need hands-on support for eating, dressing, and moving around the school and community, they will have more people around them.
- Some children with disabilities find it harder to follow preventive measures, like wearing a mask or keeping their distance from friends, classmates and the adults in their lives.
- For children who have communication challenges, it may hard for them to say they are feeling sick.
Have Questions about Getting Your Child Vaccinated?
Call your child’s doctor to talk about your concerns.
Are the Vaccines Safe for My Child?
Tens of millions of children and young adults, from ages 5 through 17, have already gotten the first dose of COVID vaccine. Ongoing safety monitoring of these children shows that COVID vaccines continue to be safe.3 Medical research has also found that the benefits of getting the COVID vaccine outweigh the known and potential risks of getting sick with COVID.
Did You Know? In clinical vaccine trials, about 20% of the children and young adults who participated had an underlying medical condition.
How Do the Vaccines Work to Keep My Child Safe?
COVID vaccines teach your immune system to recognize and fight the virus that causes COVID. Sometimes this process can cause symptoms, such as fever and chills. These symptoms are normal and are signs that your body is building protection against the virus.
Where Can I Get My Child Vaccinated?
COVID vaccines may be available at your child’s clinic or at a center within the health system. Vaccines are also widely available at pharmacies and public health departments.
The easiest way to find the nearest vaccine location is to call 211 or go online at 211 Wisconsin.
Ask for Accommodations Before the Appointment
When you make the appointment or arrive on that day, you can let providers know your child may need some accommodations. Some examples include:
- See if you and your child can stay in the car at mobile vaccine clinics.
- Make an appointment at a time when the lines will be shorter.
- Ask about a quiet space to decrease noise or bring noise-canceling headphones.
- Contact your county’s Department of Health Services to request a home-visit vaccination.
Preparing Your Child for the Vaccine
- Talk to your child before the vaccine about what to expect and ways to make it less stressful like having a favorite toy, book or iPad.
- Ask your child to sit or lie down during the vaccine and for 15 minutes after the vaccination.
- Stay for 15–30 minutes after the shot, so your child is observed by the provider. They are looking for signs of an allergic reaction, which will need immediate treatment.
Resources to Learn More
- Children with Complex Health Needs and the COVID-19 Vaccine Family & Caregiver FAQ: healthykidsdane.org
- COVID-19: What Families Need to Know – HealthyChildren.org
- 5 Tips for Talking to Someone with IDD about Vaccines: Talking to Patients with Intellectual and Developmental Disabilities about COVID-19 Vaccination | CDC
1Source: American Academy of Pediatrics, Vol.149, Issue 1, January 2022.
2Source: cdc.gov/coronavirus/2019-ncov/vaccines/children-teens-disabilities.html.
3Source: covid.cdc.gov/covid-data-tracker/#vaccination-demographic.
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