Search for answers or browse our resource library.
-
Family Voices Resources
-
-
- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
- Summer 2021
- Summer 2022
- Winter 2018
- Winter 2019
- Winter 2020
- Winter 2021
- Winter 2022
- Show all ( 13 ) Collapse
-
-
-
- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- Children's Long-Term Support Program: 8. Appealing a Denial
-
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
-
- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Childโs Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Show all ( 19 ) Collapse
-
-
- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
-
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
-
-
Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mamaโs Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
-
Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Childrenโs Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
-
Family Support
-
- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
-
- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsinโs Guardianship Training Requirement: What Families Need to Know
-
-
Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
-
Long-Term Supports
- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- Children's Long-Term Support Program: 8. Appealing a Denial
- Childrenโs Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
-
Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
-
Mental Health
-
Money Matters
-
Recursos en espaรฑol
Family Voices hojas informativas y boletines en espaรฑol
-
-
-
- Su vos cuenta #4: Participaciรณn en el Comitรฉ Asesor del Programa de Opciones Comunitarias para Niรฑos de Wisconsin
- Su voz cuenta #1: Introducciรณn al liderazgo familiar
- Su voz cuenta #2: Cรณmo ser un defensor eficaz
- Su voz cuenta #3: Las familias necesitan estar presentes en la mesa
- Su voz cuenta #5: รnase a un comitรฉ, Ideas para las familias
- Su voz cuenta #6: Supere barreras y participe
-
- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducciรณn a Una Transiciรณn Integral Para Jรณvenes y Familias
- WITPP 2: Jรณvenes participando e involucrรกndose plenamente con su comunidad
- WITPP 3: Transiciรณn para jรณvenes con necesidades de salud mental
- WITPP 4: Planificaciรณn para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificaciรณn para la transiciรณn de cuidados de salud
- WITPP 8: Planificaciรณn financiera para jรณvenes con discapacidades
- WITPP 9: Exploraciรณn del trabajo independiente para jรณvenes con discapacidades
- Apelaciรณn de un rechazo de Medicaid o BadgerCare
- Asociรกndose con el proveedor de su hijo
- Cobertura de Medicaid HMO para paรฑales
- COVID y la Seguridad Escolar
- Enfermera privada: Un servicio cubierto por Medicaid
- Organizaciones de Wisconsin que ofrecen recursos para familias con niรฑos y jรณvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niรฑos con Discapacidades o Necesidades Mรฉdicas Complejas
-
-
-
Telehealth
-
Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Childโs Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
- Show all ( 3 ) Collapse
-
List of Fact Sheets
Children's Long-Term Support Program: What to Expect After a Child is Eligible for the CLTS Program
(#4 of 8 in Series)
Reviewed June 2024
The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities, who are Medicaid eligible, so they can care for their children at home and participate in their communities. This fact sheet explains what to expect after your child has been found eligible for the CLTS Program.
My Child is Eligible!ย Now What?
Great news! Youโve applied for the CLTS Program, gone through the functional screening process, and you heard from your county waiver agency that your child is eligible. In most cases, there will be a short lag, but within a few months your child will be enrolled in the CLTS Program, and you will receive the name of your childโs Support and Service Coordinator (SSC)
Tip for Familiesย ย
If more than two months have gone by without hearing back from your county waiver agency, we encourage you to call often to find out when your child’s enrollment will start.
Your SSC will contact your family to set up an initial visit. You can meet at your home or another familiar place, like your childโs school, a library or a coffee shop. However, CLTS program regulations require at least one visit a year be in the childโs home.
What Your Child’s SSC Needs from Youย
- Share Your Dreamsย During your first visit, your SSC will ask how you care for your child, the areas of your life that are challenging, and theย dreams you and your child have forย the future.
- Get to Know Your Child Your childโs SSC may want to see your child in setting like their school day, after-school programs or at other community activities. These visits are a good way for them to get to know your childโs abilities and challenges, as well as their likes and dislikes.
- Deciding Together You will partner with your childโs SSC to think about long-term and short-term needs and goals for your child. Your childโs best life can be a guide when thinking about thisโWhat would help your child enjoy activities, build relationships and learn new skills? See the Deciding Together Guide (wisconsin.gov)ย and Deciding Together: What It Is and What It Isnโt to better understand this collaborative process.
- Accept Support Even if you have learned to live with the stresses of caring for your child with special needs, participating in the CLTS Program can be helpful. Itโs okay to let the service coordinator know you donโt need much help right now. Together, you can brainstorm future needs. As your child grows and changes, his or her needs may expand and the CLTS Program can help, especially if you have planned ahead.
Parental PaymentโYour CLTS Program Bill
Your family may be responsible for a fee or cost-share, called a Parental Payment for CLTS-funded services. This fee is based on your familyโs income and the cost of your childโs Individual Service Planย (ISP). The bill will come from your county waiver agency (CWA) and will be due after your childโs ISP has been submitted and approved. Use this link to learn more about how the parental payment works www.dhs.wisconsin.gov/clts/costs.htm.
Your SSC is Your Guide on this Journey
Families new to the CLTS Program may not realize that one of its most important benefits is access to their SSC. This new partner can provide guidance to you as you navigate the CLTS Program and access other resources. Below are some examples of how your childโs SSC can partner with you and be by your sideย as you care for your child.
- School IEP Meetings Your SSC can attend your childโs IEP meeting and advocate for school-based therapy, programming or modifications to meet their goals. They can remind you to ask the important questions and be another set of ears so youโre not missing anything that is discussed by the school team.
- Medical and Therapy Visits Your child’s SSC go to medical appointments or therapy visits if you need support, especially if you are making a decision about new equipment or a new treatment plan for your child.
- Connecting to the Community If you need ideas for things like summer programs, after-school activities or adaptive equipment, your childโs SSC can help you find resources and programs.
- During Times of Transition The SSC can help you explore new programs or discuss options during times of transition, like the move to elementary school or high school.
- Connect with Other Families One of the best ways to learn what works for your child is to talk to other families who have โbeen there.โ Ask your SSC to help find another parent or family who has gone through something similar. If your SSC canโt, contact Parent-to-Parent of Wisconsinย p2pwi.orgย or 833.361.6300.
- When You Need Help While the SSC donโt always have a solution, they can help you find they answers when you are stuck or struggling to get what you need for your child.ย
The SSC will meet with you in person each year to review and update your childโs ISP, you donโt need to wait until then to ask for their input or help. You can reach out to them any time.
Tip for Families
At your first meeting with your SSC let them know the best way to reach you: phone calls, texts or emails. And tell your SSC if there’s a best time of day or day of the week to connect for longer conversations about your child.
INFORMATION AND RESOURCES
Wisconsin Wayfinder: Childrenโs Resource Network,ย 877-WiscWayย (877-947-2929):ย Wisconsin Wayfinder offers families one name andย phoneย number to find services for children with special health care needs. Wayfinderย connects youย to a resource guideย at one of the five Childrenโs Resource Centersย in your area.
Family Voices of Wisconsin, 2024ยฉย ย |ย ย familyvoiceswi.org
0 out of 5 stars
| 5 Stars | 0% | |
| 4 Stars | 0% | |
| 3 Stars | 0% | |
| 2 Stars | 0% | |
| 1 Stars | 0% |