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Family Voices Resources
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- Fall 2018
- Fall 2019
- Fall 2020
- Fall 2021
- Fall 2022
- Issue 1 2023
- Issue 1 2024
- Issue 2 2023
- Issue 2 2024
- Issue 3 2023
- Issue 3 2024
- Issue 4 2023
- Issue 4 2024
- Spring 2018
- Spring 2019
- Spring 2020
- Spring 2021
- Spring 2022
- Summer 2018
- Summer 2019
- Summer 2020
- Summer 2021
- Summer 2022
- Winter 2018
- Winter 2019
- Winter 2020
- Winter 2021
- Winter 2022
- Show all ( 13 ) Collapse
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- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Child’s Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Equity and Diversity
- Connecting with your Child with Intellectual and Developmental Disabilities about Racism, Police Brutality, and Protests
- Racial and Social Injustice (ep. 2)
- Structural Racism, Child Health and the Need for a Racial Equity Lens
- Understanding Racial and Social Injustice (ep. 1)
- Understanding Racial and Social Injustice (ep. 3): Mama’s Circle, Part 1
- Understanding Racial and Social Injustice (ep. 4): Dads' Round Table Talk
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #5: Joining a Committee: Thoughts for Families
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
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Long-Term Supports
- 1. Introduction and Overview
- 2. Is My Child Eligible for the CLTS Program?
- 3. Completing a Functional Screen
- 4. What to Expect After a Child is Determined Eligible
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. What Services Might be Covered?
- 8. Appealing a Denial
- Children’s Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Recursos en español
Family Voices hojas informativas y boletines en español
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- Su vos cuenta #4: Participación en el Comité Asesor del Programa de Opciones Comunitarias para Niños de Wisconsin
- Su voz cuenta #1: Introducción al liderazgo familiar
- Su voz cuenta #2: Cómo ser un defensor eficaz
- Su voz cuenta #3: Las familias necesitan estar presentes en la mesa
- Su voz cuenta #5: Únase a un comité, Ideas para las familias
- Su voz cuenta #6: Supere barreras y participe
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- WITPP 10: seguridad en una vida en comunidad
- WITPP 1: Introducción a Una Transición Integral Para Jóvenes y Familias
- WITPP 2: Jóvenes participando e involucrándose plenamente con su comunidad
- WITPP 3: Transición para jóvenes con necesidades de salud mental
- WITPP 4: Planificación para Conseguir Empleo
- WITPP 5: Programas de apoyo a largo plazo para adultos
- WITPP 6: Vivienda para un joven adulto con discapacidades
- WITPP 7: Planificación para la transición de cuidados de salud
- WITPP 8: Planificación financiera para jóvenes con discapacidades
- WITPP 9: Exploración del trabajo independiente para jóvenes con discapacidades
- Apelación de un rechazo de Medicaid o BadgerCare
- Asociándose con el proveedor de su hijo
- Cobertura de Medicaid HMO para pañales
- COVID y la Seguridad Escolar
- Enfermera privada: Un servicio cubierto por Medicaid
- Organizaciones de Wisconsin que ofrecen recursos para familias con niños y jóvenes con necesidades de cuidados especiales de salud
- Preguntas para una agencia de salud mental
- Servicios do terapia
- Vacunas de COVID y Niños con Discapacidades o Necesidades Médicas Complejas
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Child’s Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
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List of Fact Sheets
Are you Tele-Ready? Making the Most of Telehealth Visits
Reviewed May 2025
Connecting with our children’s medical providers remotely has become part of life. This resource will get you ready for your next video or phone visit to make the most of your time with your child’s provider.
What is Telemedicine?
While the terms ‘telemedicine’ and ‘telehealth’ are often used interchangeably, telemedicine is focused on the clinical part of care, like a video appointment with your child’s medical providers or a virtual therapy session. Telehealth relates more broadly to remote or virtual care and health-related learning.
Tip for Families
In most cases, you will need to be in the same state as your medical provider, even though your visit will be on a screen. Ask your provider’s office or look on the portal for this information, and if you must be in-state for the appointment, don’t schedule it for a day when you will be traveling.
Before the Appointment
Gather Information
Medications: Have the containers out or a list of your child’s medications ready. If you need refills, let the provider know and make sure they send the refills to your preferred pharmacy.
Numbers: The provider may ask for your child’s height, weight, temperature or other measures of health, so take these measures as close to the appointment as possible.
Questions: Write down and prioritize your concerns or questions that you want need answered.
Plan of Care: Be ready to share updates from other providers or specialists, any relevant information about school or community support, and any changes to your child’s care plan.
Set up for Success
Location: Choose a place in your home where you can sit comfortably and set your phone, laptop or tablet on a stable surface with reliable internet access. Make sure there is
- enough light,
- no glare, and
- no window behind you (if possible)
Noise Level: Find a quiet space and let other family members know that you will be on a video or phone call with your child’s provider. Also, put your pet in another room so it won’t disrupt the appointment.
Power: Make sure your device is charged or plugged into an electrical outlet.
Download Apps and Have Your Login and Password: Try the telemedicine platform or app before the appointment and have handy the instructions your provider’s office sent to you.
Telephone Numbers: Make sure you have the provider’s (or clinic’s) phone number available in case you have any technical issues.
Ask for Accommodations: If you need a translator or closed captioning, request this before your visit—ideally when you make the appointment or several weeks in advance.
Timing Your Appointment: If possible, don’t schedule appointments at mealtimes, naptimes or at the end of a long day.
Prepare Your Child
Roleplay: Let your child know what to expect by roleplaying or social stories to explain the appointment. If possible, have a family member on standby to help if your child needs a break. Make sure your child has a snack, has used the restroom, is comfortable, and has toys and books close by.
Dress for an Exam: Dress your child in clothes that are loose and can be removed easily in case a virtual exam is needed. Prepare your child if you think the provider may ask to see an area of their body.
Just Before the Appointment
Test: Make sure the camera, microphone and internet are all working.
Close Other Apps: To keep your connection strong, close the other apps on the device that you’ll be using for the appointment.
Have a Pen and Paper: You may want to take notes.
Position the Camera: Angle the camera to let the medical provider see both you and your child clearly.
During the Appointment
Be Patient: Like an in-person medical visit, you may have to wait a few minutes for the provider to join the video or phone call.
Be Ready: You may be asked to hold the camera close to your child or take a photo of an area of their body.
Step Away: If you have a teen, you may need to briefly leave the room and let the provider talk with your child alone. This is not unusual.
Before Your Appointment Ends
Pause: Check your list of concerns and questions. Make sure you have covered everything.
Summarize Treatment Plans: Make sure your provider briefly reviews the treatment plan and next steps for your child.
Your Next Steps: Read back to the provider what you will do after the visit. Will you need to make a follow-up appointment, or will the clinic call you? Will the provider call in refills or a new prescription? Confirm they will be sending the new prescription to the correct pharmacy.
After the Appointment
Advocate for What is Best
Contact the Provider’s Office: Were you able to get what you needed, have your questions and concerns addressed during the visit? If not, call or email to follow up.
Let the Provider Know Your Preference: Tell your provider if you want to continue with virtual visits or if an in-person visit is better for you and your child. Be sure you consider things like exposing your child to viruses, winter driving conditions, and changing schedules at home, school and therapy.
INFORMATION AND RESOURCES
Wisconsin Wayfinder: Children’s Resource Network, 877-WiscWay (877-947-2929): Wisconsin Wayfinder offers families one name and phone number to find services for children with special health care needs. Wayfinder connects you to a resource guide at one of the five Children’s Resource Centers in your area.
Family Voices of Wisconsin, 2021© | familyvoiceswi.org
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