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Family Voices Resources
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- Fall 2018
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- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
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- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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- Adult Long-Term Support Programs
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Transition for Youth with Mental Health Needs
- Youth Fully Participating and Engaged in Their Community
- A Medical Home: What Should I Expect from My Doctor
- ABLE Accounts
- Are You Tele-Ready? Making the Most of Telemedicine Visits
- Community Connections and Friendship for Children with Disabilities
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Creating a Vision for Your Child’s Future
- Early Choices Matter: Children Building Choice-Making Skills
- Finding and Hiring Direct Caregivers
- Finding the Right Doctor for Your Child With Special Needs
- Inclusive Child Care for Children with Disabilities
- Insurance Prior Authorizations
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Making the Most of Doctors Appointments
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Preparing for Emergencies
- Private Duty Nursing: A Medicaid Covered Service
- Questions for My Health Plan or Insurance Company
- Respite Services for Children with Disabilities
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- Self-Determination and Children with Disabilities
- Summer Camps
- Supplemental Security Income (SSI) and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Transition - Health Coverage Options for Young Adults
- Wisconsin's Birth to 3 Program
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
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- 2017 Listening Session Report
- 2018 Listening Session Report
- 2019 Listening Session Report
- 2021 Listening Session Report
- 2022 Listening Session Report
- 2023 Listening Session Report
- 2024 Listening Session Report
- 2025 Listening Session Report
- Advocacy for Change 2021, Evaluation Summary
- Advocacy for Change 2022, Evaluation Summary
- Shared Participation
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- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Care Map Instructions: Making a Care Map for Your Child
- Emergency Preparedness: Make a Plan
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Newborn Screening: What if Your Baby's Screening Results are Concerning?
- Newborn Screening: What is Genetics?
- Newborn Screening: What is Newborn Screening?
- Respite Care vs Personal Care: Is there a difference?
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Family Leadership
- Advocacy for Change Institute
- DHS: Statutory Boards, Committees, and Councils
- Find Your State Legislator
- Partners in Policymaking
- Speak Up - Finding Your Voice
- State-Level Committees and Councils
- Wisconsin Family Leadership Institute (WiFLI)
- Your Voice Counts #1: Introduction to Family Leadership
- Your Voice Counts #2: Being an Effective Advocate
- Your Voice Counts #3: Families Need to be at the Table
- Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee
- Your Voice Counts #6: Overcome Barriers and Get Involved
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Family Support
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- Birth to 3 Program
- Birth to 3 Program: Why is a Natural Environment Important?
- Birth to 3 Program: Why is Early Intervention Important?
- Disasters and Emergencies - Keeping Children Safe
- Finding and Hiring Direct Caregivers
- Inclusive Child Care for Children with Disabilities
- Respite Care vs Personal Care: Is there a difference?
- Respite Services for Children with Disabilities
- Tips for Keeping Your Family Healthy this Summer
- Wisconsin's Birth to 3 Program
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- An Introduction to Special Education
- ARC Toolkit to Telling Your Story
- Children's Resource Centers
- Community Connections and Friendship for Children with Disabilities
- Emergency Preparedness: Make a Plan
- Finding the Right Doctor for Your Child With Special Needs
- How to Tell Your Story
- Preparing for Emergencies
- Starting and Sustaining Family Support Groups: Sustaining a Family Support Group
- Starting and Sustaining Family Support Groups: Virtual Support Groups
- Starting and Sustaining Family Support Groups: Where to Begin?
- Summer Camps
- Wisconsin’s Guardianship Training Requirement: What Families Need to Know
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Health Care
- A Medical Home: What Should I Expect from My Doctor
- Care Map Instructions: Making a Care Map for Your Child
- COVID Resource List
- COVID Vaccines and Children with Disabilities or Complex Medical Needs
- Glossary: Health Care Acronyms & Abbreviations
- Insurance Prior Authorizations
- Making the Most of Doctors Appointments
- Nursing Services for Students with Healthcare Needs
- Partnering with Your Child's Provider
- School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials
- TIPS: Partnering with Your Child's Health Plan
- Youth to Adult Health Transition
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Long-Term Supports
- 1. Introduction and Overview
- 2. Eligibility Details and Steps
- 3. Completing a Functional Screen
- 4. What’s Next After Eligibility
- 5. Developing Your Child's Individual Service Plan
- 6. Your Child's Service Plan: Creating Outcomes
- 7. Covered Services
- Children's Long-Term Support Program: 8. Appealing a Denial
- Children’s Community Options Program (CCOP)
- Early Choices Matter: Children Building Choice-Making Skills
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Medicaid
- Children's Long-Term Supports Program
- Find Your Federal Representative
- Forward Health - Health Care Programs
- Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities
- Medicaid and Non-Emergency Medical Transportation
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid Coverage for Diapers and Other Incontinence Supplies
- Medicaid HealthCheck "Other Services"
- Medicaid HMO Coverage for Diapers
- Medicaid Personal Care Services
- Medicaid: An Important Program for Children with Disabilities
- Medicaid: Appealing a Denial
- Private Duty Nursing: A Medicaid Covered Service
- SSI Disability Starter Kit
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Mental Health
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Money Matters
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Telehealth
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Transition to Adult Life
- Adult Long-Term Support Programs
- Creating a Vision for Your Child’s Future
- Exploring Self-Employment for Youth with Disabilities
- Financial Planning for Youth with Disabilities
- Healthcare Transition Planning
- Housing for a Young Adult with Disabilities
- Introduction to Integrated Transition for Youth and Families
- Planning for Employment
- Safety Planning for Life in the Community
- Self-Determination and Children with Disabilities
- Supported Decision Making for Transition-Age Youth
- Supported Decision Making Guide - BPDD
- Transition - Health Coverage Options for Young Adults
- Transition for Youth with Mental Health Needs
- Working with a Fiscal Employer Agent
- Working with an IRIS Consultant
- Youth Fully Participating and Engaged in Their Community
- Youth to Adult Health Transition
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List of Fact Sheets
Youth Fully Participating in Their Community
#2 of 10 in Series
Reviewed October 2025
Integrated transition planning is a path to living a full, meaningful and connected life as a member of the community. It means planning for what will change as your young adult becomes an adult. We know that everyone is different, so every idea might not be right for your family.
Imagine Their Best Life: As your young adult prepares for adulthood, think broadly about their future. Together with your child, talk about health, leisure activities, culture, learning, friends, employment, housing, faith, and more.
Where to Begin
What Makes Your Young Adult Happy? Pay attention to the things that interest your young adult and what they like to share with friends, family and teachers. Talk with them about what made their day a go well. Then use these ideas to find opportunities to get them involved in their community.
Ask for Support You don’t have to figure this out alone. There are professionals who can offer assistance to your family. If your young adult is enrolled in long-term care, ask their service and support coordinator about community supports for adults. Connect with your local Independent Living Center, your young adult’s high school special education or IEP team, and when your young adult is age 17 ½, contact your county’s Aging and Disability Resource Center (ADRC).
Your Young Adult Will Continue to Grow Like most teens and young adults, your young adult will continue to grow and develop new skills and interests. As these change you and your young adult can find new activities and connect with new agencies or organizations to add to their social connections.
Explore New Areas to Get More Involved in the Community
Health and Wellness Think about adaptive fitness programs, sports leagues, or other ways to get regular exercise. One option in some communities is Special Olympics Wisconsin programs that offer fun ways to connect with others and stay active.
Leisure Activities and Community Connections Your local YMCA or recreation department may offer clubs, arts and crafts, and adaptive programming. Public libraries, service clubs, and local charities often plan activities and volunteer opportunities. Visit your community or local government websites for information.
Culture and Arts Many communities have local theaters, museums and art centers with discounted tickets, free performances, or other programs that adults can participate in with others in the community.
Lifelong Learning Colleges across the state have programs for students with disabilities and services for students to request accommodations. Some universities have post-secondary programs for students with intellectual and learning disabilities on campus. See Midwest Inclusive Post Secondary Alliance (MIPSA) or thinkcollege.net. ‘Auditing’ a course or sitting in the college classroom to listen without college credit can be a low-cost way to learn a new topic and connect with peers that have a similar interest.
Life Skills Courses for cooking, money management, and staying healthy and safe are good options for everyone. There are online and in-person courses. Check with Independent Living Centers and the Healthy, Safe and Connected Toolkit.
Employment Work let you meet new people, learn new skills, ideas, and connects you to the community. Your young adult’s interests and skills can guide them to a job that is the best fit for them. The Before Age 18: Employment planning guides, your young adult’s high school IEP team, and the Division of Vocational Rehabilitation (DVR) can support your young adult’s job skills and career exploration.
Housing If your young adult wants to move out of your home as an adult, there are options like living independently with support, with friends or other adults. Contact your county’s Aging and Disability Resource Center (ADRC) when your young adult is 17 ½ to learn about community-supported living and other housing options. Also, see the Housing for Young Adults fact sheet.
Civic Engagement Is your young adult registered to vote? If your child wants to be politically active, try taking part in the annual Disability Advocacy Day or join a chapter of People First Wisconsin. Go to Wisconsin Disability Vote Coalition to learn more.
Spirituality and Faith Your adult child can stay involved or become connected to a house of faith or spiritual community. Many faith communities offer activities, outings, and clubs to get to know other members. Your house of faith may have a website with event information. If not, drop by their office.
Relationships and Sexuality Like their peers, your young adult might want to date, find a long-term partner, or even get married. Resources are available to learn about healthy and respectful relationships. Visit Vanderbilt University Medical Center, Health and Development Resources for Families for toolkits on healthy bodies, puberty, sex and sexuality, as well as many other topics related to transitioning to adult healthcare.
Where to Learn More
- Healthy, Safe, and Connected is a toolkit that offers simple ways to be sure you know how to do all three. wi-bpdd.org/wp-content/uploads/2022/08/Healthy_Safe_Connected_V08.22.pdf
- Pacer Center has resources and links to learn about independence and community living. pacer.org/guides/education-work-housing/ewh-400/
INFORMATION AND RESOURCES
Wisconsin Wayfinder: Children’s Resource Network, 877-WiscWay (877-947-2929): Wisconsin Wayfinder offers families one name and phone number to find services for young adults with special health care needs. Wayfinder connects you to a resource guide at one of the five Children’s Resource Centers in your area.
If you need this fact sheet as a pdf or other format contact Lynn at lynn@fvofwi.org.
Family Voices of Wisconsin, 2023© familyvoiceswi.org
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