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There are many roles families can take to influence change. Some roles are paid and some are unpaid, and they can be short-term or long-term commitments, depending on what is best for you.

Following is a list of roles families can take to impact policy and systems.1

  • Member of Task Force
  • Advisory Board Member
  • Participant in a Focus Group
  • Reviewer of Materials
  • Program Evaluator
  • Paid Program Staff
  • Program Consultant
  • Mentor or Support Parent for Other Families
  • Provider of Testimony at Hearings
  • Advocate (paid or unpaid)
  • Fundraiser
  • Provider of Input for Quality Improvement Initiative
  • Provider of Input for Hiring of New Staff
  • Grant Reviewer
  • Group Facilitator
  • Social Media Contributor
  • Blog Writer or Contributor

1Adapted from Thomas, J. and Jeppson, E.S. (1997), Essential allies: Families as advisors, Institute for Family-Centered Care, Bethesda, MD

 

 

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