Family Leadership

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Me a Family Leader? Yes. You!

Extend the advocacy you do every day for your family to benefit all community families. History is filled with important moments when family leaders and advocates came forward to use their voice and improve the programs families depend upon every day. Family Voices of Wisconsin supports family leadership through legislative advocacy and leadership preparedness learning opportunities. Start your advocacy journey!

Start Your Advocacy Journey:

Policy Topics

As part of a statewide network of disability organizations, we monitor changes in state and federal law and advocate for policies that benefit families with disabilities.

Budget and Policy Items that We're Tracking

April 2024—Advocacy for Change’s focus this year highlighted the ongoing caregiver crisis, Special Education funding and funding of school-based mental health services and called for increases to Medicaid rates. 

FVW staff continue to advocate for the shortening of enrollment delays for Children’s Long-Term Support (CLTS) programs, improved family access to the Medicaid benefit known as HealthCheck Other Services, and improved access to Private Duty Nursing for families with children with medical complexity. 
 
If you would like to talk about next steps in addressing any advocacy issue, please contact us at danielle@fvofwi.org.

April, 2023 – Disability Resource Center for Children and Families

Update: April, 2023: The Department of Health Services has announced plans for a new initiative, called ‘No Wrong Door’, which will largely meet this need. Families will have one statewide telephone number to call for guidance to their local Regional Center for Children and Youth with Special Health Care Needs, for 1-to-1 assistance and guidance.

May 2022

Policy Priorities

March 2021

Disability Resource Center for Children and Families Proposal

March 2021

Family Voices Budget Summary for Children’s Issues

January 2021

Survival Coalition Budget Priorities 2021-2023

January 2021

State Budget Update

August 2020

Issues that Impact People with Disabilities (background for Nov 2020 Election Candidates)

June 2020

The Impact of School Closures on Families and Students with Disabilities

March 12, 2020

Supports for Children with Disabilities

March 12, 2020

Policy Priorities for Children with Disabilities and Their Families

July 19, 2019

Impact of 2019-2021 State Budget on People with Disabilities

June 6, 2019

Important Budget Updates for Children with Disabilities

March 1, 2019

Statement on Governor Evers Proposed Budget for Children with Disabilities.

March 2, 2019

State Budget Summary – What’s In the Governor’s Budget?

March 2019

Budget Priorities for Children with Disabilities

Survival Coalition

The Survival Coalition of Wisconsin Disability Organizations is comprised of more than 40 state and local disability organizations. For more than 20 years, Survival has focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life. See current updates here.

Children's Long-Term Support Council

Over 15,000 children in Wisconsin have disabilities requiring long-term support. The Council for Children with Long-Term Support (CLTS) Needs is charged with providing recommendations to the Secretary regarding the needed infrastructures, accountability measures and mechanisms, financing systems, training programs, program design elements, efficiencies and statewide equity and consistency necessary to implement service delivery systems in communities throughout the State. Read More about this advisory council to DHS, including past (and future) discussion topics, priorities, and opportunities to apply for a role on the committee.

Advocacy Toolkit

Use your story to make a positive impact in your community.

Budget and Policy Items that We're Tracking

April, 2023 – Disability Resource Center for Children and Families

Update: April, 2023: The Department of Health Services has announced plans for a new initiative, called ‘No Wrong Door’, which will largely meet this need. Families will have one statewide telephone number to call for guidance to their local Regional Center for Children and Youth with Special Health Care Needs, for 1-to-1 assistance and guidance.

May 2022

Policy Priorities

March 2021

Disability Resource Center for Children and Families Proposal

March 2021

Family Voices Budget Summary for Children’s Issues

January 2021

Survival Coalition Budget Priorities 2021-2023

January 2021

State Budget Update

August 2020

Issues that Impact People with Disabilities (background for Nov 2020 Election Candidates)

June 2020

The Impact of School Closures on Families and Students with Disabilities

March 12, 2020

Supports for Children with Disabilities

March 12, 2020

Policy Priorities for Children with Disabilities and Their Families

July 19, 2019

Impact of 2019-2021 State Budget on People with Disabilities

June 6, 2019

Important Budget Updates for Children with Disabilities

March 1, 2019

Statement on Governor Evers Proposed Budget for Children with Disabilities.

March 2, 2019

State Budget Summary – What’s In the Governor’s Budget?

March 2019

Budget Priorities for Children with Disabilities

Survival Coalition

The Survival Coalition of Wisconsin Disability Organizations is comprised of more than 40 state and local disability organizations. For more than 20 years, Survival has focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life. See current updates here.

Children's Long-Term Support Council

Over 15,000 children in Wisconsin have disabilities requiring long-term support. The Council for Children with Long-Term Support (CLTS) Needs is charged with providing recommendations to the Secretary regarding the needed infrastructures, accountability measures and mechanisms, financing systems, training programs, program design elements, efficiencies and statewide equity and consistency necessary to implement service delivery systems in communities throughout the State. Read More about this advisory council to DHS, including past (and future) discussion topics, priorities, and opportunities to apply for a role on the committee.

Telling Your Family Story

Your Voice Counts: Family Leadership Fact Sheet Series

You are an advocate for your children at school, the doctor’s office and in your community. These experiences show the importance of using your voice, especially when decisions about your child’s future are being made. Being a family leader extends the advocacy skills you already have, to benefit all families.

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