Family Advisory Committee for the
Children and Youth with Special Health Care Needs (CYSHCN)
Network of Programs
A new Family Advisory Committee will ensure families are meaningful partners in shaping the system of care for children and youth with special health care needs (CYSHCN) by providing family-driven guidance and feedback to the Department of Health Services, Division of Public Health, Children and Youth with Special Health Care Needs (CYSHCN Program) on policy, program effectiveness, operations, and public awareness.
The CYSHCN Network of Programs Currently Includes:
- ABC for Health
- Baby Badger Network: Genetics in Wisconsin
- Children’s Resource Centers
- Connecting Families
- Family Voices of Wisconsin
- PATCH
- Pediatric Mobile Care of Gunderson Medical Center
- WisconSibs
- Wisconsin Collaborative for Healthcare Quality
- Wisconsin Family Leadership Institute (WiFLI)
- Wisconsin Wayfinder
The Advisory Committee is composed primarily of parents or family members of children and youth with special health care needs, including two youth or young adult members (up to age 22). Ideal candidates bring lived experience with one or more CYSHCN programs, reflect the perspectives of families of children with special health care needs across the state, are comfortable collaborating with individuals who hold diverse experiences and viewpoints, and can commit to preparing for and attending scheduled meetings (approximately 16 hours per year).
COMMITTEE REQUIREMENTS
- Prepare for meetings by reviewing materials provided in advance
- Attend 2 annual in-person meetings, to be held in a central Wisconsin location
- Attend 2 annual virtual meetings
- Submit required information to facilitate stipend payment
- Have a relationship with a child who has special health care needs
- Live within the state of Wisconsin
- Able to make a two-year commitment
- Attend an in-person orientation in Stevenโs Point on May 15, 2026, from 12:00pm – 3:00pm
COMPENSATION
- Stipend payment for attended meetings of $150 plus mileage to in-person meeting sites
- Overnight accommodations for those traveling more than 2 hours to meeting location
To apply, please complete this application form no later than March 15, 2026.
Please Note: This Committee is logistically supported by Family Voices of Wisconsin under a Title V grant from the Department of Health and Human Services. While the committee provides insight and feedback to the department, it is not an agency council. In addition, while many families utilize other programs (including CLTS), the scope of this advisory committee is focused on the CYSHCN Program and its network of programs.
All applicants will be notified by April 10.