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# Family Voices of Wisconsin

Inform • Empower • Connect

## Sitemaps

- [XML Sitemap](https://familyvoiceswi.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [We Know Someone Who Can Solve That!](https://familyvoiceswi.org/we-know-someone-who-can-solve-that/) - Sometimes life hands your family a big challenge. You're lucky though because you live in Wisconsin and our beautiful state has plenty of first-rate resources to help you. But, when you're juggling work and caregiving you don't have much time left to research the purpose of each of these organizations and how to contact the
- [We're Listening! May 5, 4:00pm Listening Session](https://familyvoiceswi.org/were-listening-may-5-400pm-listening-session/) - Zoom Link: https://dhswi.zoom.us/j/84198134540 Meeting ID: 841 9813 4540 One tap mobile:312-626-6799,, 84198134540# Families and providers are invited to be part of our Virtual Listening Session as part of the 2021 Circles of Life Conference. On Wednesday, May 5 from 4:00 – 5:15, Family Voices will host a Zoom session to hear directly from families who care
- [Families Have a lot to Say about Virtual Learning in Wisconsin](https://familyvoiceswi.org/families-have-a-lot-to-say-about-virtual-learning-in-wisconsin/) - In June Family Voices joined other Survival Coalition members to listen to families from across the state about the impact and potential barriers to education caused by the move to virtual learning. We hosted two focus groups to get this feedback―one for families statewide and one just for Milwaukee Public School families. Our focus group participants
- [Riding the Waves of COVID-19](https://familyvoiceswi.org/riding-the-waves-of-covid-19/) - Family Voices and the UW Pediatric Pulmonary Center offered a series of webinars about COVID-19 for families who have children and youth with special health care needs. We're posting them here in case you missed them when they originally aired in May. These webinars aim to end COVID confusion by explaining how to keep your
- [Summer in the New Normal](https://familyvoiceswi.org/summer-in-the-new-normal/) - Summer has arrived and we all feel like bears coming out of hibernation. Our kids are finishing up their online school year and we're wondering what the next few months will be like for our families. It's true that we're not under quarantine, but we need to think about COVID-19 because it's still active. We
- [Are You Ready? We Can Help!! What Families Can Do to Prepare for Emergencies.](https://familyvoiceswi.org/are-you-ready-we-can-help/) - As families who have children with special needs, we are probably more prepared than many for these unpredictable times and social isolation. We realize you are probably overwhelmed with all the information about COVID-19, so we are providing some suggestions for what you can do immediately to be prepared for this and future emergencies. Read
- [Learn How to RAISE YOUR VOICE](https://familyvoiceswi.org/advocacy-for-change-2020/) - Advocacy for Change is a one-day conference to learn advocacy and skills training for parents, family members, professionals and providers who care for, or work with children with disabilities or special health care needs.
- [Appealing a Medicaid Denial](https://familyvoiceswi.org/medicaid-denial/) - If your family is applying for or is already covered by Medicaid or BadgerCare Plus and you have received a denial of benefits or eligibility, you should know that appealing the denial is not difficult. You have a right to appeal a denial and you are encouraged to do so, especially if you believe the
- [Have You Read Our Fall Newsletter Yet?](https://familyvoiceswi.org/fall-newsletter-2019/) - Our Fall Newsletter is ready and it's filled with information to help you raise a child who is strong, decisive and able to make good choices. This issue covers the idea of self determination. We explain what it is and give you tips on raising your child to lead a self-determined life. There's also information
- [Circles of Life: Call for Presentations!](https://familyvoiceswi.org/circles-of-life-call-for-presentations/) - CALL FOR PRESENTERS! Circles of Life Conference May 7-8, 2020 Wilderness Resort, Wisconsin Dells Apply NOW to present at the Circles of Life Conference, May 2020! Parents, family members, providers or anyone who has ideas and wisdom to share is encouraged to apply! The deadline for proposals is October 1. To find the application materials
- [Our Listening Session Has Families and Professionals Talking](https://familyvoiceswi.org/family-voices-listening-session/) - The 2019 Circles of Life Conference was a great setting for Family Voices’ annual, Family Listening Session. Over 160 parents, family members and providers ate dinner and took part in this productive and spirited discussion about family challenges and the good things that are happening all around us. Family Voices of Wisconsin directed the conversation
- [Prior Authorizations: Family Input Can Make a Difference](https://familyvoiceswi.org/prior-authorizations-family-input-can-make-a-difference/) - A PA is an approval process used by health plans and Medicaid to decide if a service or treatment will be covered.
- [Important Budget Updates for Children with Disabilities](https://familyvoiceswi.org/important-budget-updates-for-children-with-disabilities/) - The 2019-2021 budget is moving forward. The Legislature’s Joint Finance Committee (JFC) voted on the Department of Health Services’ budget on June 4. This includes items that impact families who have children with disabilities. Family Voices will continue to watch what’s happening at the capitol closely and keep you updated on the progress on Wisconsin’s
- [Summary of Governor's 2019-2021 State Budget Proposal](https://familyvoiceswi.org/summary-of-governors-2019-2021-state-budget-proposal/) - Wisconsin's new governor has issued his first state budget proposal and it's full of information that will affect families with children with special health care needs. No need to read all of this huge document! Family Voices has a summary of the items that matter to families. Read more here.
- [How to find respite and personal care providers](https://familyvoiceswi.org/respite-providers/) - Children with disabilities or special health care needs and their families can benefit from having help at home. Parents can also benefit from having someone outside their immediate family assist a child at home and provide much need “time off” from caregiving. However, it may be hard to find workers to fill these positions. Before
- [Children’s Long-Term Support Waiver…What the heck is this?](https://familyvoiceswi.org/childrens-long-term-support-waiverwhat-the-heck-is-this/) - You've probably seen the words, and heard about the program but have you wondered what exactly is the Children's Long-Term Support Waiver, or CLTS? And more importantly how can it help your family? We have the fact sheets for you! We’ve taken all aspects of this state and federally-funded (but county run) program and broken
- [Announcing Our New Website!](https://familyvoiceswi.org/new-website/) - Advocacy for Change is a one-day conference to learn advocacy and skills training for parents, family members, professionals and providers who care for, or work with children with disabilities or special health care needs.
- [My Child has to Complete a Functional Screen. Help!](https://familyvoiceswi.org/functional-screen/) - Many programs in Wisconsin that provide supports and services for children with special needs require that a functional screen be completed to determine eligibility. Examples include the Children’s Long-Term Support (CLTS) Waivers, the Children’s Community Options Program (CCOP), and the Katie Beckett Program. The screening tool collects information on your child’s health, need for supports

## Pages

- [Home](https://familyvoiceswi.org/) - Family Voices of Wisconsin is a state affiliate of national Family Voices and the home of Wisconsin’s Family-to-Family Health Information Center. Upcoming Events Read more Join Our community Read more About Us Family Voices helps families navigate health care and community support and services by providing learning sessions, information and resources. As a family-run organization,
- [Resource Library](https://familyvoiceswi.org/resource-library/) - Home | Resource Library [epkb-knowledge-base id=1]
- [Circles of Life Conference](https://familyvoiceswi.org/circles-of-life-conference/) - Circles of Life Conference Home | Circles of Life Conference Registration Financial Assistance Lodging Support Exhibit Sponsor Activities for Children Gathering of Youth Sibshop Family Fun Night Program Sessions Schedule at a Glance Keynote Speaker Contact Registration Financial Assistance Lodging Support Exhibit Sponsor Activities for Children Gathering of Youth Sibshop Family Fun Night Program Sessions
- [Learn](https://familyvoiceswi.org/learn/) - Around Wisconsin, or in the comfort of your home, we have trainings to help you advocate for and navigate the many services available to your child, and your family.
- [Host a Learning Session](https://familyvoiceswi.org/host-a-learning-session/) - Host a Learning Session in Your Community If you have questions from families about navigating resources, understanding Medicaid, long-term supports, or the transition to adulthood, WE CAN HELP! For almost 30 years, Family Voices has been empowering families to be the best possible advocates and system navigators for their children. Family Voices invites community partners including schools,
- [Nurture Network](https://familyvoiceswi.org/nurture-network/) - NURTURE NETWORK OF SOUTHEAST WI FAMILIES A Project of Family Voices of Wisconsin Our Group Our network is inclusive of all moms from southeast Wisconsin who have high-support needs kids, including kids with developmental and intellectual disabilities, medically complex kids, and those who are neurodivergent. Join Our Group Nurture Network of Southeast WI Families Our
- [Transition Workshop](https://familyvoiceswi.org/transition-workshop/) - Registration is Now Open! Future Ready is an engaging and structured program to equip teens and young adults with disabilities, ages 14 to 21, and their families, with the tools and a plan for the transition to adult life.Teens will build confidence, self-advocacy skills, and create a clear vision for their future. As parents, you
- [Events Calendar](https://familyvoiceswi.org/events-calendar/) - Home | Events Calendar Events Calendar All learning sessions are open to Wisconsin families and the professionals who support them. Each session will be presented by experienced Family Voices staff, unless otherwise noted. PRIVACY POLICY Family Voices Wisconsin values your privacy. We do not share your full name or any part of your contact information
- [Wisconsin Family Leadership Institute-WiFLI](https://familyvoiceswi.org/wisconsin-family-leadership-institute-wifli/) - Wisconsin Family Leadership Institute-WiFLI Home | Wisconsin Family Leadership Institute-WiFLI 2026 opportunities Get updates on future WiFLI sessions sign up for the Family Voices Newsletter. When families of children with disabilities and special health care needs are at the decision-making table, programs are improved and more accessible. Resources and services are created by the people
- [CYSHCN Advisory Committee](https://familyvoiceswi.org/cyshcn-advisory-committee/) - Family Advisory Committee for the Children and Youth with Special Health Care Needs (CYSHCN) Network of Programs CURRENT CYSHCN COMMITTEE MEMBERS Danielle Bauer (May 26)Keely Bauer (May 26)Sarah Bell (May 26),* Chair Executive CommitteeDani Bradley (May 26)Sherita Greer (May 26)* Margit Kuehl (May 26)* Carissa Miller (May 26)* Anna
- [Advocacy for Change](https://familyvoiceswi.org/advocacy-for-change/) - A one-day conference that will teach you how to turn your personal story and experiences into real-world advocacy efforts.
- [About Us](https://familyvoiceswi.org/about-us/) - We guide families through an overwhelmingly complicated healthcare system so they can find the services their child needs and the relief they need.
- [Circles of Life Sessions 2026](https://familyvoiceswi.org/circles-of-life-sessions-2026/) - May 14 - 15, 2026 Workshop Sessions with Descriptions Thursday 10:30 - 11:45 A1 (Spanish Interpreter)Mental Health: Working with Your Child’s Therapist to Improve Outcomes Ellen Merker Kids with disabilities don’t exist in a bubble. All systems interact with one another to improve or impede successful goals. Caregivers can help improve mental health outcomes by knowing how to select a therapist that
- [CLTS Professionals Pre-Conference](https://familyvoiceswi.org/clts-professionals-pre-conference/) - On the Path Together: Strengthening Family Relationships A CLTS Support and Service Coordinator Professional Development Day Wednesday, May 13, 10:00am – 3:00pm | Holiday Inn Stevens Point Convention Center Thank you to the Department of Health Services, Bureau of Children’s Services, for co-hosting and supporting this event! Our Attendees The content for this day has
- [Advocacy Toolkit](https://familyvoiceswi.org/advocacy-toolkit/) - You are an advocate for your children at school, the doctor’s office and in your community. These experiences show the importance of using your voice, especially when decisions about your child’s future are being made. Being a family leader extends the advocacy skills you already have, to benefit all families. TELLING YOUR FAMILY STORY Examples of Family Testimony
- [Advocacy for Change 2026: Everything You Need to Get Ready!](https://familyvoiceswi.org/advocacy-for-change-2026-everything-you-need-to-get-ready/) - advocacy for change March 12, 2026 Everything You Need to Get Ready! Things to do before AFC day: An Advocacy Pep Talk with Lynn Breedlove (video, 16 minutes) Your Voice Counts: Families Need to be at the Table (fact sheet)The Wisconsin State Budget Process (video, 7 minutes)Join us on Saturday, March 7, 9:30am – 11:00am for a Virtual
- [Family Leadership](https://familyvoiceswi.org/family-leadership/) - Become an advocate for your family with special health care needs, and learn how to be an advocate for other families too.
- [Calendar](https://familyvoiceswi.org/calendar/)
- [Accessibility Statement](https://familyvoiceswi.org/accessibility-statement/) - Home | Accessibility Statement Accessibility Statement Family Voices of Wisconsin is committed to providing a website that is accessible to the widest possible audience, regardless of technology or ability. We are actively working to increase the accessibility and usability of our website and in doing so adhere to many of the available standards and guidelines.This
- [Connect](https://familyvoiceswi.org/connect/) - Join our Community Home | Connect Sign up for our electronic news and updates Information for families of children with special health care needs or disabilities and the professionals who support them. Host a learning session in your community Answers for your group on topics ranging from starting children’s long-term supports to the transition to
- [Supporters](https://familyvoiceswi.org/supporters/) - Our Supporters Home | Supporters Supporter Recognition Many thanks to all the people and organizations who help fund and support Family Voices of Wisconsin in 2023. Family Voices of Wisconsin is an affiliate of National Family Voices, a national organization and grassroots network of families and caregivers for children and youth with special health care
- [Comment - Thank you](https://familyvoiceswi.org/comment-thank-you/) - Thank You for Your Comment! We will be in touch with you shortly.
- [We Need Your Help](https://familyvoiceswi.org/we-need-your-help/) - Home | We Need Your Help Our work is funded by grants. To be responsible, we need to give our grantors an idea of who uses our materials. Please help us by taking this 4-question, ANONYMOUS survey. Many Thanks from the Family Voices Team! Notice: JavaScript is required for this content.
- [Site Map](https://familyvoiceswi.org/site-map/) - Home | Site Map Site Map Pages About Us Accessibility Statement Advocacy for Change Advocacy for Change 2026: Everything You Need to Get Ready! Advocacy Toolkit Calendar Circles of Life Conference Circles of Life Sessions 2026 CLTS Professionals Pre-Conference Connect CYSHCN Advisory Committee Events Calendar Family Leadership Home Host a Learning Session Learn Nurture Network
- [Ask a question. Make a suggestion. Thank you](https://familyvoiceswi.org/ask-a-question-make-a-suggestion-thank-you/) - Ask a question. Make a suggestion. Thank you for contacting us. Someone will contact you shortly.
- [We Need Your Help Thank you](https://familyvoiceswi.org/we-need-your-help-thank-you/) - Many Thanks from the Family Voices Team!

## resource library

- [COVID Vaccines and Children with Disabilities or Complex Medical Needs](https://familyvoiceswi.org/resource-library/covid-vaccines-and-children-with-disabilities-or-complex-medical-needs/) - Print English/ Print Spanish COVID is still impacting our lives. In Wisconsin, children and adults are getting sick from the virus, but it’s not too late to protect yourself and your child by getting vaccinated. (This includes children who were exposed to COVID.) Medical experts agree that fully vaccinating all children1, including those with special
- [DHS: Statutory Boards, Committees, and Councils](https://www.dhs.wisconsin.gov/aboutdhs/councils.htm)
- [2026 Listening Session Report](https://familyvoiceswi.org/wp-content/uploads/2026/08/Listening-Session-Report-2026.pdf)
- [Center for Transition of Adult Health Care](https://movingtoadulthealthcare.org/toolkits/)
- [Newsletter: Issue 2, 2026](https://mailchi.mp/fvofwi/2026-newsletter-issue-2)
- [Always One Step Ahead: Understanding Elopement and Wandering](https://familyvoiceswi.org/resource-library/always-one-step-ahead-understanding-elopement-and-wandering/) - Always One Step Ahead: Understanding Elopement and Wandering Melanie Kretschmer,Community Engagement Specialistmelanie@fvofwi.org Elopement and wandering happen when a child leaves a safe place without an adult knowing.These behaviors are common for those with autism and other developmental needs. They can be scary for families and caregivers because they may put a child in danger.Wandering usually
- [Summer Is a Great Time to Build Relationships with Your Legislators](https://familyvoiceswi.org/resource-library/summer-is-a-great-time-to-build-relationships-with-your-legislators/) - Summer Is a Great Time to Build Relationships with Your Legislators Danielle Tolzmann,Executive Directordanielle@fvofwi.org During the summer, many state legislators and candidates for office spend more time in their home communities. This makes it a great time to get to know them.You don’t need to ask for anything specific—simply introduce yourself, share your family’s story,
- [Finding Dental Care for Children with Disabilities and Medical Complexities](https://familyvoiceswi.org/resource-library/finding-dental-care-for-children-with-disabilities-and-medical-complexities/) - Finding Dental Care for Children with Disabilities and Medical Complexities Amber Weise,Policy Internamber@fvofwi.org Finding dental care for a child with a disability or complex medical needs can be challenging, even when your child has Medicaid. Before scheduling an appointment, it can help to ask a few questions to make sure a dental office is a
- [Did You Know?: Using Outcomes to Direct Your Child’s CLTS Service Plan](https://familyvoiceswi.org/resource-library/did-you-know-using-outcomes-to-direct-your-childs-clts-service-plan/) - Did You Know? Using Outcomes to Direct Your Child’s CLTS Service Plan Lynn Renner,Events and Outreach Managerlynn@fvofwi.org Families new to the Children’s Long-Term Support (CLTS) Program may not know how this program can be used to support their child. There is no listing of services or menu of options by design. Each family works with their
- [Medicaid: Appealing a Denial](https://familyvoiceswi.org/resource-library/medicaid-appealing-a-denial/) - Medicaid: Appealing a Denial Reviewed December 2025 If your family or child is covered by Medicaid, including BadgerCare Plus, Katie Beckett or SSI-related Medicaid, and your benefits have been denied, reduced or ended, you have the right to appeal the denial. To appeal, or formally disagree with a decision, you can request a fair hearing
- [5. Mental Health - Questions for a Mental Health Agency](https://familyvoiceswi.org/resource-library/questions-for-a-mental-health-agency/) - Mental Health Services for My Child: Questions for a New Provider (#5 of 5 in a Series)Reviewed April 2026 Knowing where to begin if your child or teen needs a new mental health or behavioral health provider can be challenging. These questions can be a guide while you’re finding the right provider in a private therapy practice or clinic setting. Does Your Clinic
- [4. Mental Health - Paying for Services](https://familyvoiceswi.org/resource-library/4-mental-health-paying-for-services/) - Mental Health Services for My Child: Paying for Mental Health Care (#4 of 5 in a Series)Reviewed March 2026 If your child or teen needs mental health or behavioral health treatment, or prescription medications, you may be asking how you will pay for it. Coverage may be available through private health insurance, Medicaid, or in
- [3. Mental Health - Waiting for Services](https://familyvoiceswi.org/resource-library/3-mental-health-waiting-for-services/) - Mental Health Services: Waiting for Services (#3 of 5 in a Series)Reviewed March 2026 In many parts of Wisconsin, there are not enough mental health providers to serve every child who could benefit from their services. Families may experience delays before their child can be evaluated or seen for therapy by a mental health or
- [2. Mental Health - Treatment Options](https://familyvoiceswi.org/resource-library/2-mental-health-treatment-options/) - Mental Health Services: Treatment Options (#2 of 5 in a Series)Reviewed March 2026 Mental health care is a complex system, and families can find it difficult to locate services and providers to meet their children’s needs. The best place to start is to bring your concerns to your child’s primary care provider and request support
- [State-Level Committees and Councils](https://familyvoiceswi.org/wp-content/uploads/2026/05/State-Level-Committees-and-Councils-List-3.16.276-BW-w-QR.pdf)
- [Número 4, 2024](https://familyvoiceswi.org/wp-content/uploads/2025/01/Spanish-Newsletter-2024-Issue-4.pdf)
- [Número 1, 2024](https://familyvoiceswi.org/wp-content/uploads/2024/06/2024-Family-Voices-Newsletter-1-SPANISH.pdf)
- [Safety Planning for Life in the Community](https://familyvoiceswi.org/resource-library/safety-planning-for-life-in-the-community/) - Safety Planning for Life in the Community #10 of 10 in SeriesReviewed December 2025 Integrated transition planningfor youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different, so
- [Exploring Self-Employment for Youth with Disabilities](https://familyvoiceswi.org/resource-library/exploring-self-employment-for-youth-with-disabilities/) - Exploring Self-Employment for Youth with Disabilities #9 of 10 in SeriesReviewed December 2025 Integrated transition planningfor youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different, so every
- [Early Choices Matter: Children Building Choice-Making Skills](https://familyvoiceswi.org/resource-library/early-choices-matter-children-building-choice-making-skills/) - Early Choices Matter: Children Building Choice-Making Skills Reviewed December 2025 Making choices is a learned skill that is important in our daily lives. All people, including those with disabilities, have the right to make choices about the things that affect them.Choice-Making is Important The best way to learn choice-making is to practice. Start practicing with your
- [Financial Planning for Youth with Disabilities](https://familyvoiceswi.org/resource-library/financial-planning-for-youth-with-disabilities/) - Financial Planning for Youth with Disabilities #8 of 10 in SeriesReviewed December 2025 Integrated transition planning for youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different, so
- [Healthcare Transition Planning](https://familyvoiceswi.org/resource-library/healthcare-transition-planning/) - Healthcare Transition Planning #7 of 10 in SeriesReviewed September 2025 Integrated transition planningfor youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different, so every idea might not
- [Housing for a Young Adult with Disabilities](https://familyvoiceswi.org/resource-library/housing-for-a-young-adult-with-disabilities/) - Housing for a Young Adult with Disabilities (#6 of 10 in a series)Reviewed December 2025 Integrated transition planning for youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different,
- [Newsletter: Issue 1, 2026](https://mailchi.mp/fvofwi/2026-newsletter-issue-1)
- [Newsletter: Issue 1, 2025](https://mailchi.mp/fvofwi/2025-newsletter-issue-1)
- [Newsletter: Issue 2, 2025](https://mailchi.mp/fvofwi/2025-newsletter-issue-2)
- [Newsletter: Issue 3, 2025](https://mailchi.mp/fvofwi/2025-newsletter-issue-3)
- [Newsletter: Issue 4, 2025](https://mailchi.mp/fvofwi/2025-newsletter-issue-4)
- [Adult Long-Term Support Programs](https://familyvoiceswi.org/resource-library/wisconsin-integrated-transition-planning-project-adult-long-term-support-programs/) - Adult Long-Term Support Programs (#5 of 10 in a series)Reviewed December 2025 Integrated transition planning for youth with disabilities creates a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. We know that everyone is different, so every
- [Planning for Employment](https://familyvoiceswi.org/resource-library/wisconsin-integrated-transition-planning-project-planning-for-employment/) - Planning for Employment (#4 of 10 in a series)Reviewed December 2025 Integrated transition planning is a path to living a full, meaningful, and connected life as a community member. It means team-based planning for your child to become an adult. Everyone is different, so every idea might not be right for your family. Get Started Starting
- [The Move from CLTS to Adult Long-Term Programs](https://familyvoiceswi.org/resource-library/the-move-from-clts-to-adult-long-term-programs/) - The Move from CLTS to Adult Long-Term Care Programs Issue 1, 2026 More than 29,000 children are currently enrolled in Wisconsin’s Children’s Long-Term Support (CLTS) Program. For families who have a teen in CLTS, transition to adulthood means many changes, including the move from CLTS to adult long-term care programs. This transition can feel sudden
- [Transition for Youth with Mental Health Needs](https://familyvoiceswi.org/resource-library/wisconsin-integrated-transition-planning-project-transition-for-youth-with-mental-health-needs/) - Transition for Youth with Mental Health Needs #3 of 10 in SeriesReviewed December 2025 Integrated transition planning is a path to living a full, meaningful, and connected life as a community member. It means planning for what will change as your child becomes an adult. Everyone is different, so every idea might not be right for
- [Youth Fully Participating and Engaged in Their Community](https://familyvoiceswi.org/resource-library/wisconsin-integrated-transition-planning-project-youth-fully-participating-and-engaged-in-their-community/) - Youth Fully Participating in Their Community #2 of 10 in SeriesReviewed October 2025 Integrated transition planning is a path to living a full, meaningful and connected life as a member of the community. It means planning for what will change as your young adult becomes an adult. We know that everyone is different, so every
- [Introduction to Integrated Transition for Youth and Families](https://familyvoiceswi.org/resource-library/wisconsin-integrated-transition-planning-project-introduction-to-integrated-transition-for-youth-and-families/) - Introduction to Integrated Transition for Youth and Families #1 of 10 in SeriesReviewed October 2025 Integrated transition planning is a path to living a full, meaningful and connected life as a member of the community. It means planning for what will change as your young adult becomes an adult. We know that everyone is different, so
- [Your Voice Counts #3: Families Need to be at the Table](https://familyvoiceswi.org/resource-library/your-voice-counts-3-families-need-to-be-at-the-table/) - Your Voice Counts: Families Need to be at the Table (#3 of 6 in Series)Reviewed September 2025 Family advocacy has been at the center of improving the programs that serve children with disabilities. In 1982, Julie Beckett’s advocacy to have her daughter cared for at home, instead of the hospital, led to the creation of
- [Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities](https://familyvoiceswi.org/resource-library/the-katie-beckett-program/) - Katie Beckett Program: A Doorway to Medicaid for Children with Disabilities Reviewed May 2025 The Katie Beckett Program, also known as Katie Beckett Medicaid, is one of the doorways into Wisconsin Medicaid for children with disabilities and special health care needs.Katie Beckett provides the same coverage as other Medicaid programs like BadgerCare Plus and SSI-Related
- [1. Mental Health - Where Do I Begin?](https://familyvoiceswi.org/resource-library/1-where-do-i-begin/) - Mental Health: Where Do I Begin? (#1 of 5 in a Series)Reviewed December 2025 When to Get HelpParents and family members are often the first to be concerned about their child’s behavior or how they’re handling of big emotions. Sometimes it’s hard for parents to know when to act on their concerns because they don’t
- [Children's Long-Term Support Program: 8. Appealing a Denial](https://familyvoiceswi.org/resource-library/8-appealing-a-denial/) - Children’s Long-Term Support Program: Appealing a Denial of Services or Program Eligibility (#8 of 8 in Series) Reviewed December 2025 The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities. As a Medicaid-connected
- [7. Covered Services](https://familyvoiceswi.org/resource-library/7-covered-services/) - Children's Long-Term Support Program: Covered Services (#7 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly funded by the federal and
- [6. Your Child's Service Plan: Creating Outcomes](https://familyvoiceswi.org/resource-library/6-your-childs-service-plan-creating-outcomes/) - Children’s Long-Term Support Program: Your Child's Service Plan - Creating Outcomes (#6 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly
- [5. Developing Your Child's Individual Service Plan](https://familyvoiceswi.org/resource-library/5-developing-your-childs-individual-service-plan/) - Children's Long-Term Support Program: Developing Your Child’s Individual Service Plan (#5 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly funded
- [4. What’s Next After Eligibility](https://familyvoiceswi.org/resource-library/4-whats-next-after-eligibility/) - Children's Long-Term Support Program: What's Next After Eligibility (#4 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support Program (CLTS) provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly funded by the
- [3. Completing a Functional Screen](https://familyvoiceswi.org/resource-library/3-completing-a-functional-screen/) - Children's Long-Term Support Program: Completing a Functional Screen (#3 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support Program (CLTS) provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.Getting StartedThe functional screen is an evaluation tool that considers a
- [2. Eligibility Details and Steps](https://familyvoiceswi.org/resource-library/eligibility-details-and-steps/) - Children's Long-Term Support Program: Eligibility Details and Steps (#2 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support (CLTS) Program provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly funded by the
- [1. Introduction and Overview](https://familyvoiceswi.org/resource-library/introduction-and-overview/) - Children’s Long-Term Support Program: An Introduction and Overview (#1 of 8 in Series)Reviewed December 2025 The Children’s Long-Term Support Program (CLTS) provides funding and support for families who have children with disabilities so they can care for their children at home and fully participate in their communities.As a Medicaid-connected program, it’s jointly funded by the
- [Private Duty Nursing: A Medicaid Covered Service](https://familyvoiceswi.org/resource-library/private-duty-nursing-a-medicaid-covered-service/) - Private Duty Nursing: A Medicaid Covered Service Reviewed September 2025 Skilled nursing services at home allow children with complex medical needs to get the care they need safely in a familiar and loving environment. For children covered by Wisconsin Medicaid including Badgercare Plus, Katie Beckett Medicaid or SSI Medicaid, their ForwardHealth card may cover the
- [Your Voice Counts #6: Overcome Barriers and Get Involved](https://familyvoiceswi.org/resource-library/your-voice-counts-6-overcome-barriers-and-get-involved/) - Your Voice Counts: Overcome Barriers and Get Involved (#6 of 6 in Series)Reviewed September 2025 You are an advocate for your children at school, at the doctor’s office, and in your community. Being a family leader extends the advocacy skills you already have, to benefit all families. While you may want to take the next
- [The Power of Connections](https://familyvoiceswi.org/resource-library/the-power-of-connections/) - The Power of Connections November 2025 COVID-19 brought the topic of loneliness to the forefront of our national conversation. Many parents and caregivers raising children with high-support needs feel this sense of isolation profoundly. Our journey is different from that of other families. We often serve as teacher, therapist, advocate, nurse, and direct caregiver—all at
- [Your Voice Counts #4: Participating in a Children’s Community Options Program Advisory Committee](https://familyvoiceswi.org/resource-library/your-voice-counts-4-participating-in-a-childrens-community-options-program-advisory-committee/) - Your Voice Counts: Participating in a Children’s Community Options Program Advisory Committee (#4 of 6 in Series)Reviewed September 2025 The best way to improve the programs and services that support children with disabilities is for families to join decision-makers at the table to share their firsthand experiences. The views of parents/families on what works, what
- [Your Voice Counts #2: Being an Effective Advocate](https://familyvoiceswi.org/resource-library/your-voice-counts-2-being-an-effective-advocate/) - Your Voice Counts: Being an Effective Advocate (#2 of 6 in Series)Reviewed September 2025 You are an advocate for your children at school, the doctor’s office and in your community. These experiences show the importance of using your voice, especially when decisions about your child’s future are being made. Being a family leader extends the advocacy skills you
- [Your Voice Counts #1: Introduction to Family Leadership](https://familyvoiceswi.org/resource-library/your-voice-counts-1-introduction-to-family-leadership/) - Your Voice Counts: Introduction to Family Leadership (#1 of 6 in Series)Reviewed September 2025 You are an advocate for your children at school, the doctor’s office and in your community. These experiences show the importance of using your voice, especially when decisions about your child’s future are being made. Being a family leader extends the advocacy skills you
- [Navigating Private Insurance and Medicaid](https://familyvoiceswi.org/resource-library/navigating-private-insurance-and-medicaid/) - Navigating Private Insurance and Medicaid September 2025 Our kids with special health care needs have more frequent medical visits than other children. These are hard enough to keep track of, but we also have to make sure we understand their health insurance, and they have adequate coverage, so we don’t end up with large bills
- [Preparing for Emergencies](https://familyvoiceswi.org/resource-library/preparing-for-emergencies/) - Preparing for Emergencies Reviewed September 2025 It is important that we take steps to prepare our families to stay healthy and safe during any emergency. This may be a natural disaster, like a tornado, wildfire or flood, a long-term power outage, or a health emergency like the COVID pandemic. No matter the situation, you can
- [Starting and Sustaining Family Support Groups: Sustaining a Family Support Group](https://familyvoiceswi.org/resource-library/starting-and-sustaining-family-support-groups-sustaining-a-family-support-group-3-of-3/) - Starting and Sustaining Family Support Groups: Sustaining a Family Support Group (#3 of 3 in Series)Reviewed September 2025 Members of support groups find they are worthwhile because they offer comfort in shared experiences that create safe spaces to connect. Starting a support group takes time and energy to make the right environment, yet even with
- [Starting and Sustaining Family Support Groups: Virtual Support Groups](https://familyvoiceswi.org/resource-library/starting-and-sustaining-family-support-groups-virtual-support-groups-2-of-3/) - Starting and Sustaining Family Support Groups: Virtual Support Groups (#2 of 3 in Series)Reviewed September 2025 Support groups provide safe spaces for families who have children with disabilities or other special health care needs to connect and share information and resources. While face-to-face support groups are beneficial, many groups are finding virtual options to be
- [Supported Decision Making for Transition-Age Youth](https://familyvoiceswi.org/resource-library/supported-decision-making-for-transition-age-youth/) - An alternative to guardianship through which people use friends, family members and professionals to help them understand situations and choices they face, so they may make their own decisions without the “need” for guardianship.
- [Working with an IRIS Consultant](https://familyvoiceswi.org/resource-library/working-with-an-iris-consultant/) - Working with an IRIS Consultant Reviewed August 2025 The Include, Respect, I Self-direct (IRIS) program is one of Wisconsin’s adult long-term care programs. Families may not know the role an IRIS consultant or how it differs from a Children’s Long-Term Support (CLTS) Support and Service Coordinator. Unlike CLTS, which is meant for children, IRIS is
- [Working with a Fiscal Employer Agent](https://familyvoiceswi.org/resource-library/working-with-a-fiscal-employer-agent/) - Working with a Fiscal Employer Agent Reviewed August 2025 Get Started For families is new to the adult long-term support system, you may not be familiar with Fiscal Employer Agents (FEAs). This resource explains the role a Fiscal Employer Agent (FEA) plays while you* look for the supports and services you need to live your best
- [Inclusive Child Care for Children with Disabilities](https://familyvoiceswi.org/resource-library/finding-quality-child-care-for-a-child-with-special-needs/) - Inclusive Childcare for Children with Disabilities Reviewed August 2025 There are many high-quality childcare programs in our state. For children with disabilities, choosing an inclusive program, that cares for kids with and without special needs, provides a natural environment where children of all abilities can learn from each other and prepares them to be part
- [Creating a Vision for Your Child’s Future](https://familyvoiceswi.org/resource-library/imagining-your-childs-future/) - Creating a Vision for Your Child’s Future Reviewed: August 2025 As families we need to be intentional about planning for our children’s future and think broadly about possibilities. We need to find ways for our children to build independence to help prepare them for their future. Children without disabilities have everyday experiences that get them
- [Community Connections and Friendship for Children with Disabilities](https://familyvoiceswi.org/resource-library/community-connections-and-friendship-for-children-with-disabilities/) - Community Connections and Friendship for Children with Disabilities Reviewed July 2025 We all want to see our kids have friends and be part of the community. Finding these connections can be one of the more challenging parts of parenting a child with a disability or special health care need. These tips and ideas are starting
- [Starting and Sustaining Family Support Groups: Where to Begin?](https://familyvoiceswi.org/resource-library/starting-and-sustaining-family-support-groups-where-to-begin-1-of-3/) - Starting and Sustaining Family Support Groups: Where to Begin (#1 of 3 in Series)Reviewed August 2025 Family support groups provide safe spaces to connect and share information and resources. This fact sheet gives some direction to parents, grandparents or other caregivers who want to start a support group.Why Start a Family Support Group?Connect with other
- [Transition - Health Coverage Options for Young Adults](https://familyvoiceswi.org/resource-library/health-coverage-options-for-young-adults/) - Health Coverage Options for Young Adults with Disabilities Reviewed August 2025 Families who have children or young adults with disabilities or special health care needs know the importance of good health insurance. When a child becomes an adult at age 18, their health insurance coverage may change and eligibility for some programs may end. Start
- [Finding and Hiring Direct Caregivers](https://familyvoiceswi.org/resource-library/finding-and-hiring-direct-caregivers/) - Finding and Hiring Direct Caregivers Reviewed July 2025 A direct caregiver is hired to support a family who has a child with a disability or special health care needs. The direct caregiver can provide respite care like a break, or time off, from caregiving duties, or can provide personal care services. Personal care is a Medicaid
- [Insurance Prior Authorizations](https://familyvoiceswi.org/resource-library/insurance-prior-authorizations/) - Insurance and Medicaid Prior Authorizations Reviewed August 2025 A Prior Authorization (PA) Request is an approval process used by health plans and Wisconsin Medicaid to decide if a medical service, device or treatment will be covered. It’s sometimes also called an authorization request or prior approval. In most cases, health plans and Medicaid approve PA requests based on their decision
- [Respite Services for Children with Disabilities](https://familyvoiceswi.org/resource-library/respite-services-for-children-with-disabilities/) - Respite Services for Children with Disabilities Reviewed July 2025 Respite care provides short-term relief, or time off, from direct caregiving for your child with disabilities or special health care needs. A respite care provider gives parents or other caregivers time away from their direct caregiving responsibilities.Why Respite is Important Respite care gives parents and caregivers the
- [Wisconsin's Birth to 3 Program](https://familyvoiceswi.org/resource-library/wisconsins-birth-to-3-program/) - Wisconsin's Birth to 3 Program Reviewed August 2025 The services and supports available to infants and toddlers who have developmental delays and disabilities are referred to as early intervention. In Wisconsin the Birth to 3 Program provides early intervention services to help children learn, communicate, interact with others, and thrive at home, in childcare, and other everyday
- [Supplemental Security Income (SSI) and Children with Disabilities](https://familyvoiceswi.org/resource-library/supplemental-security-income-ssi-and-children-with-disabilities/) - Supplemental Security Income (SSI) and Children with Disabilities Reviewed July 2025 Supplemental Security Income (SSI) is a publicly funded program, managed by the federal Social Security Administration that provides monthly income to a child or adult who has limited income, limited assets or resources and is disabled, blind or elderly. In Wisconsin, when a child qualifies for
- [Be Ready for the New School Year](https://familyvoiceswi.org/resource-library/be-ready-for-the-new-school-year/) - Be Ready for the New School Year August 2025 Whether your child with a disability is starting kindergarten or high school, there are things you can do now to ease that back-to-school stress your child [and you] may be feeling. Start the Conversation A good place to start is talking with your child about the
- [Family Voices Fact Sheet List](https://familyvoiceswi.org/wp-content/uploads/2025/07/Fact-Sheet-List-7.21.2025.pdf)
- [2025 Listening Session Report](https://familyvoiceswi.org/wp-content/uploads/2025/07/2025-Community-Conversation-and-Listening-Session-7.6.2025.pdf)
- [Wisconsin’s Guardianship Training Requirement:  What Families Need to Know](https://familyvoiceswi.org/resource-library/wisconsins-guardianship-training-requirement-what-families-need-to-know/) - Wisconsin's Guardianship Training Requirement: What Families Need to Know Reviewed July 2025 For Wisconsin families planning to become their adult child’s legal guardian, a new training is now required before the petition for guardianship will be approved by your county’s circuit court.Guardianship A legal process of transferring rights from one person (“the ward”) to another. The
- [Questions for My Health Plan or Insurance Company](https://familyvoiceswi.org/resource-library/questions-about-my-health-plan-coverage/) - Questions for Your Private Health Plan: Preparing for the Cost of Health Care Reviewed July 2025 If your child needs to see a new medical provider, start new medications, treatment or therapy service, and you are relying on your family’s private health insurance for payment, it is important to prepare for the potential cost. These
- [School and Community Based Therapy Services: Understanding Your Options and Avoiding Insurance Denials](https://familyvoiceswi.org/resource-library/school-and-community-based-therapy-services-understanding-your-options-and-avoiding-insurance-denials/) - School and Community Based Therapy Services: Understanding the Options and Avoiding Insurance Denials Reviewed July 2025 Children with disabilities or special health care needs often have occupational therapy (OT), physical therapy (PT) and speech-language pathology (SLP) services to enhance their ability to participate in school and their community. These therapies may be provided at school
- [A Medical Home: What Should I Expect from My Doctor](https://familyvoiceswi.org/resource-library/a-medical-home-what-should-i-expect-from-my-doctor-2/) - A Medical Home: What Should I Expect from My Doctor Reviewed July 2025 A Medical Home is a way of providing high-quality healthcare, especially for those with complex medical needs. It is not a place. Rather, it is a trusting partnership between you, your child, and your health care team.Not all health care settings offer
- [Self-Determination and Children with Disabilities](https://familyvoiceswi.org/resource-library/self-determination-children/) - Self-Determination and Children with Disabilities Reviewed July 2025 Self-determination is the belief that all people have the right to control their own lives and make choices for their future.As parents and caregivers, we often see our role as protecting our children and keeping them safe from harm. Yet, by making every decision for them, or
- [Medicaid: An Important Program for Children with Disabilities](https://familyvoiceswi.org/resource-library/explaining-and-exploring-wisconsin-medicaid/) - Medicaid: An Important Program for Children with Disabilities Reviewed May 2025 Medicaid is a joint, federal and state program that covers healthcare and long-term supports for children and adults with disabilities. Children in foster care, pregnant women, people with low income, and older adults may also be eligible for Medicaid. Medicaid is part of ForwardHealth
- [Are You Tele-Ready? Making the Most of Telemedicine Visits](https://familyvoiceswi.org/resource-library/are-you-tele-ready-making-the-most-of-telemedicine-visits/) - Are you Tele-Ready? Making the Most of Telehealth Visits Reviewed May 2025 Connecting with our children’s medical providers remotely has become part of life. This resource will get you ready for your next video or phone visit to make the most of your time with your child’s provider.What is Telemedicine?While the terms ‘telemedicine’ and ‘telehealth’
- [Supported Decision-Making and Guardianship](https://familyvoiceswi.org/resource-library/guardianship-and-supported-decision-making/) - Supported Decision-Making and Guardianship June 2025 The transition to adult life for teens with disabilities can be complicated. There are changes to healthcare providers, finishing high school, enrolling in new support programs, and finding new ways to connect with the community. There are also important legal considerations. Legal Changes A person legally becomes an adult at
- [We Have Your New Year’s Resolution: Make the Most of Your Child’s Medicaid Benefits](https://familyvoiceswi.org/resource-library/we-have-your-new-years-resolution-make-the-most-of-your-childs-medicaid-benefits/) - If your child is covered by Wisconsin Medicaid, do you really know all the important benefits that are available? You probably know that your child’s ForwardHealth card (a.k.a. Medicaid insurance card) covers the cost of seeing the doctor, but you may not realize it also covers so many other important services, supports and products you
- [Reimagining Summer: Planning for the New Normal](https://familyvoiceswi.org/resource-library/reimagining-summer-planning-for-the-new-normal/) - For many of us, staying safer at home to limit our risk of getting COVID-19 will continue well into the summer months. Because our children are at higher risk if they become ill with this virus, we need to seriously weigh the risks of jumping back into community activities. In addition, many camps and community
- [Being Prepared: What Can Families Do Right Now](https://familyvoiceswi.org/resource-library/being-prepared/) - As families who have children with special needs, we are probably more prepared than many for these unpredictable times and social isolation. We know what it’s like to have a child home from school, how to stop the spread of germs and how to care for a child who’s ill. We realize you might be
- [Medicaid Personal Care Services](https://familyvoiceswi.org/resource-library/medicaid-personal-care-services/) - Medicaid Personal Care Services Reviewed May 2025 Personal Care Services are a Medicaid benefit that help you care for your child or an adult with special needs in your home by assisting with daily living activities. These activities include: Bathing Feeding Laundry Light Housekeeping Meal Preparation Toileting (For a complete listing of daily living activities,
- [Governor Evers Hosts Listening Sessions](https://familyvoiceswi.org/resource-library/governor-evers-hosts-listening-sessions/) - Governor Evers Hosts Listening Sessions Newsletter: 2024, Issue 4 Governor Evers is preparing his state budget proposal to give to the legislature in February and will be holding both in-person and virtual listening sessions in December. Comments can also be submitted online this month.These listening sessions are your chance to let him know what is
- [ABLE Accounts](https://familyvoiceswi.org/resource-library/able-accounts/) - ABLE Accounts Reviewed May 2025 An Achieve a Better Life Experience (ABLE) account is a savings and investment option for people with disabilities who qualify. It falls under Section 529A of the Internal Revenue Service tax code. The ABLE Act allows a person whose disability began before age 26 to save money in an ABLE account
- [SSI Disability Starter Kit](https://www.ssa.gov/disability/disability_starter_kits.htm)
- [Making the Most of Doctors Appointments](https://familyvoiceswi.org/resource-library/making-the-most-of-doctors-appointments/) - Making the Most of Doctors Appointments Reviewed June 2025 If the thought of an appointment with your child’s doctor causes a little stress, these tips will help you and your child with special health care needs get the most out of every doctor’s appointment. Before the Appointment Be Prepared
- [Finding the Right Doctor for Your Child With Special Needs](https://familyvoiceswi.org/resource-library/finding-the-right-doctor-for-your-child-with-special-needs/) - Finding the Right Doctor for Your Child with Special Needs Reviewed May 2025 Have you changed health plans, moved or for other reasons need to find a new doctor for your child with special needs? While there is not one, perfect doctor for every child, a family should look for a provider who treats you
- [Medicaid Coverage for Diapers and Other Incontinence Supplies](https://familyvoiceswi.org/resource-library/medicaid-coverage-for-diapers-and-other-incontinence-supplies/) - Medicaid Coverage for Diapers and Other Incontinence Supplies Reviewed May 2025 Wisconsin Medicaid may cover the cost of diapers and other incontinence starting when a child turns age 4. These products must be sent from J & B Medical, or the current contracted provider of these supplies. The medical term for diapers is incontinence supplies.
- [Medicaid and Non-Emergency Medical Transportation](https://familyvoiceswi.org/resource-library/medicaid-and-non-emergency-medical-transportation/) - Medicaid and Non-Emergency Medical Transportation Reviewed May 2025 Medicaid Can Pay for Your Ride to the Doctor Medicaid’s Non-Emergency Medical Transportation (NEMT) benefit can pay for transportation to medical appointments. In Wisconsin, MTM coordinates medical transportation for all Medicaid or BadgerCare Plus covered appointments including therapy and dental visits. Options include scheduling a ride, receiving a bus
- [2. Servicios de Salud Mental - Opciones de Tratamiento y Programas](https://familyvoiceswi.org/wp-content/uploads/2019/11/Mental-Health-2-Treatment-Options-Spanish-.pdf)
- [Issue 1 2024](https://mailchi.mp/fvofwi/2024-newsletter-issue-1)
- [Issue 2 2024](https://mailchi.mp/fvofwi/2024-newsletter-issue-2)
- [Issue 3 2024](https://mailchi.mp/fvofwi/2024-newsletter-issue-3)
- [Issue 4 2024](https://mailchi.mp/fvofwi/2024-newsletter-issue-4)
- [Sustaining your Advocacy and Avoiding Burnout](https://familyvoiceswi.org/resource-library/sustaining-your-advocacy-and-avoiding-burnout/) - Sustaining Your Advocacy and Avoiding Burnout Newsletter: 2025, Issue 1 We advocate for our children with disabilities at school, at the doctor’s office and countless other settings to get what they need. Many of us also choose to advocate to improve the policies and programs that impact the larger community. With full lives, adding the
- [Understanding the Functional Screen](https://familyvoiceswi.org/resource-library/understanding-the-functional-screen/) - Understanding the Functional Screen Newsletter: 2025, Issue 1 If you are applying for the Children’s Long-term Support (CLTS) Program or Katie Beckett Medicaid, your child will be assessed using a tool called the Functional Screen. Once your child is enrolled, your service coordinator will use the functional screen to determine if they continue to qualify
- [Medicaid HealthCheck "Other Services"](https://familyvoiceswi.org/resource-library/medicaid-healthcheck-other-services/) - Medicaid: HealthCheck Other Services Reviewed February 2025 HealthCheck “Other Services” (HCOS) is a Medicaid benefit for children under age 21 who are enrolled in Medicaid programs like Katie Beckett, SSI, Waiver MA, or BadgerCare Plus. HCOS may cover medically necessary services, treatment or medical supplies not typically covered under Wisconsin’s Medicaid Plan. If your child is
- [New Children’s Long-Term Support (CLTS) Learning Session](https://familyvoiceswi.org/resource-library/new-childrens-long-term-support-clts-learning-session/) - New Children’s Long-Term Support (CLTS) Learning Session Newsletter: 2024, Issue 4 We are pleased to announce that Family Voices of Wisconsin (FVW) has completed a new learning session to make sure every family is prepared for their child’s enrollment in Wisconsin’s Children’s Long-Term Support (CLTS) Program. Get Ready: An Introduction to the Children’s Long-Term Support
- [Healthcare.gov Open Enrollment](https://familyvoiceswi.org/resource-library/healthcare-gov-open-enrollment/) - Healthcare.gov Open Enrollment Newsletter: 2024, Issue 4 If your family needs private health insurance and your employer does not offer affordable plans, it’s open enrollment, the time to shop on HealthCare.gov, the ACA’s private health insurance marketplace. Open enrollment ends January 15 so there’s still time to shop for the best coverage. Most people can
- [Improved Access to Katie Beckett Medicaid](https://familyvoiceswi.org/resource-library/improved-access-to-katie-beckett-medicaid/) - Improved Access to Katie Beckett Medicaid Newsletter: 2024, Issue 4 The Katie Beckett Program offers a doorway into Medicaid for thousands of families in Wisconsin. For the first time, families whose children are enrolled in the Katie Beckett Program can manage their coverage online through the Access website, access.wi.gov. They can also apply for the
- [Safety Planning for Children with Disabilities](https://familyvoiceswi.org/resource-library/safety-planning-for-children-with-disabilities/) - Safety Planning for Children with Disabilities Newsletter: 2024, Issue 3 Is your family ready when the unexpected happens? For children with disabilities, learning what to do in an emergency may take focused attention and intentional practice. This fall, talk as a family about safety, model safety activities, and make a plan to be prepared for
- [2024 Listening Session Report](https://familyvoiceswi.org/wp-content/uploads/2024/09/2024-Listening-Session-Report-compressed.pdf)
- [Development and Operations Manager](https://familyvoiceswi.org/resource-library/development-and-operations-manager/) - NEW Position Announcement: Job Vacancy at Family Voices of WisconsinDevelopment and Operations ManagerJune 19, 2024 Family Voices of Wisconsin (FVW) is seeking an individual to join our team who has a passion for helping families of children with disabilities or special healthcare needs. The person best suited for this position has skills and knowledge of
- [College is a Real Possibility for Youth with Disabilities](https://familyvoiceswi.org/resource-library/college-is-a-real-possibility-for-youth-with-disabilities/) - College is a Real Possibility for Youth with Disabilities Newsletter Issue 2, 2024Main Article Like their peers, many teens with disabilities dream about going to college. They want to experience living on campus, taking courses that interest them and being more independent—And they CAN.Wisconsin has both fully inclusive programs and programs specifically for those with
- [Summer Camps](https://familyvoiceswi.org/resource-library/summer-camps/) - Summer Camps Reviewed February 2024 This listing of camps and other summer activities is meant for children and teens with disabilities and special health care needs. Please note that this is a sampling of programs, and Family Voices does not endorse or recommend any specific camp. These links may have information about additional programs. Very Special
- [Children's Resource Centers](https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm) - https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
- [Newsletter 2024, Issue 1 - Public Benefits and Planning for Your Child's Financial Needs](https://familyvoiceswi.org/resource-library/newsletter-2024-issue-1-public-benefits-and-planning-for-your-childs-financial-needs/) - Public Benefits and Planning for Your Child’s Financial Needs February 2024 State and federal programs cover the cost of services for children with disabilities. These programs, like the Children’s Long-Term Support Program (CLTS) and adult long-term care programs like Family Care and IRIS require that the person be Medicaid-eligible. However, public programs including Medicaid and
- [Emergency Preparedness: Make a Plan](https://youtu.be/fqdQI6GRJEM)
- [2023 Listening Session Report](https://familyvoiceswi.org/wp-content/uploads/2023/09/2023-Listening-Session-Report-compress.pdf)
- [Respite Care vs Personal Care: Is there a difference?](https://youtu.be/ISTzNVW77pU)
- [Su vos cuenta #4: Participación en el Comité Asesor del Programa de Opciones Comunitarias para Niños de Wisconsin](https://familyvoiceswi.org/wp-content/uploads/2023/07/Family-Leader-Fact-Sheet-4-CCOP-Advisory-Comm-Spanish-Compress.pdf)
- [Advocacy for Change, Budget Presentation](https://youtu.be/1neqNSrpMG8)
- [Wisconsin Family Leadership Institute (WiFLI)](https://familyvoiceswi.org/wifli-wisconsin-family-leadership-institute/)
- [Roles for Family Engagement](https://familyvoiceswi.org/resource-library/roles-for-family-engagement/) - Print English There are many roles families can take to influence change. Some roles are paid and some are unpaid, and they can be short-term or long-term commitments, depending on what is best for you. Following is a list of roles families can take to impact policy and systems.1 Member of Task Force Advisory Board
- [COVID Safety Statement](https://familyvoiceswi.org/resource-library/covid-safety-statement/) - Family Voices is committed to hosting a safe event for every participant. As preventive measures evolve, there may be updates to the safety measures for our in-person events. Our decisions and preventive measures are guided by the requirements and guidance of the U.S. Centers for Disease Control (CDC) as well as federal, state and local
- [Telehealth Security](https://familyvoiceswi.org/wp-content/uploads/2021/02/BB-Secure-Info-compress.pdf)
- [Telehealth Glossary](https://familyvoiceswi.org/wp-content/uploads/2021/02/Master-Telehealth-Glossary-compress.pdf)
- [Supported Decision Making Guide - BPDD](https://familyvoiceswi.org/wp-content/uploads/2019/01/Supported_decision_making_booklet_final.pdf)
- [All About ABLE Accounts](http://ablenrc.org)
- [Forward Health - Health Care Programs](https://www.dhs.wisconsin.gov/forwardhealth/index.htm)
- [Find Your Federal Representative](https://www.house.gov/representatives/find-your-representative)
- [Children's Long-Term Supports Program](https://www.dhs.wisconsin.gov/clts/index.htm)
- [Budget Recommendations: Children's Long-Term Supports](https://www.familyvoiceswi.org/wp-content/uploads/2019/04/CLTS.pdf)
- [TIPS: Partnering with Your Child's Health Plan](https://familyvoiceswi.org/wp-content/uploads/2020/04/2-TIPS-sheet-Partnering-with-a-Health-Plan-compress.pdf)
- [Partnering with Your Child's Provider](https://www.familyvoiceswi.org/wp-content/uploads/2019/05/Partnering-with-Your-Childs-Provider.pdf)
- [Nursing Services for Students with Healthcare Needs](https://dpi.wi.gov/sites/default/files/imce/sspw/pdf/snnursingservices.pdf)
- [COVID Resource List](https://familyvoiceswi.org/wp-content/uploads/2020/09/COVID-19-Resource-List-compress.pdf)
- [ARC Toolkit to Telling Your Story](https://www.thearc.org/file/advocacy/Story-Toolkit-Final.pdf)
- [An Introduction to Special Education](https://dpi.wi.gov/sites/default/files/imce/sped/pdf/intro-se.pdf)
- [Tips for Keeping Your Family Healthy this Summer](https://familyvoiceswi.org/wp-content/uploads/2020/06/Summer-2020-Insert-compress.pdf)
- [Disasters and Emergencies - Keeping Children Safe](http://familyvoices.org/wp-content/uploads/2010/10/Disasters_Emergencies-tip-sheet-final-5.23.18.pdf)
- [Birth to 3 Program](https://www.dhs.wisconsin.gov/birthto3/index.htm)
- [Find Your State Legislator](https://maps.legis.wisconsin.gov)
- [1. Introducción y descripción general](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-1-in-Spanish.pdf)
- [2. ¿Mi hijo es elegible para el programa de exención para CLTS?](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-2-in-Spanish.pdf)
- [3. Completar una evaluación funcional](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-3-in-Spanish.pdf)
- [4. Qué esperar después de que se determina que un niño es elegible](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-4-in-Spanish.pdf)
- [5. Desarrollando el Plan Individual de Servicios de su Hijo](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-5-in-Spanish.pdf)
- [6. Plan de servicios de su hijo: Creando resultados](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-6-in-Spanish.pdf)
- [7. ¿Qué servicios se podrían cubrir?](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-7-in-Spanish.pdf)
- [4. Servicios de Salud Mental - Pagar por la atención de salud mental](https://familyvoiceswi.org/wp-content/uploads/2019/11/Mental-Health-4-Paying-for-Services-Spanish-.pdf)
- [3. Servicios de Salud Mental - Esperando Servicios](https://familyvoiceswi.org/wp-content/uploads/2019/11/Mental-Health-3-Waiting-for-Services-in-Spanish-1-1.pdf)
- [1. Servicios de Salud Mental - ¿Por dónde empiezo?](https://familyvoiceswi.org/wp-content/uploads/2019/11/Mental-Health-1-Where-do-I-begin-Spanish-.pdf)
- [8. Apelando una denegación](https://familyvoiceswi.org/wp-content/uploads/2019/11/CLTS-8-in-Spanish.pdf)
- [Summary of Governor's 2019-2021 State Budget Proposal](https://www.familyvoiceswi.org/wp-content/uploads/2019/04/Budgetsum.pdf)
- [Newborn Screening: What is Newborn Screening?](https://youtu.be/G7QUCLgdziQ)
- [Newborn Screening: What if Your Baby's Screening Results are Concerning?](https://youtu.be/GonU4iZPdvE)
- [Newborn Screening: What is Genetics?](https://youtu.be/quPWE7PU5C8)
- [Medicaid Coverage for Diapers and Other Incontinence Supplies](https://youtu.be/vfVfLBHICQg)
- [Care Map Instructions: Making a Care Map for Your Child](https://youtu.be/8tuMwj28o00)
- [Birth to 3 Program: Why is Early Intervention Important?](https://youtu.be/F_2b1Z0oD4w)
- [Birth to 3 Program: Why is a Natural Environment Important?](https://youtu.be/ZO7ELUA1Qnc)
- [Telehealth Webinar 4: Your Family's First Telemedicine Appointment](https://familyvoices.org/telehealth/curriculum/webinar4/)
- [Telehealth Webinar 3: Can You See Your Provider?](https://familyvoices.org/telehealth/curriculum/webinar3/)
- [Telehealth Webinar 2: Do You Have a Device?](https://familyvoices.org/telehealth/curriculum/webinar2/)
- [Telehealth Webinar 1: Are You Connected?](https://familyvoices.org/telehealth/curriculum/webinar1/)
- [Medicaid HMO Coverage for Diapers](https://familyvoiceswi.org/resource-library/incontinence-supplies-for-families-participating-in-medicaid-hmos/) - Print -English / Print- Spanish Medicaid HMOS can pay for diapers for your childThe medical term for diapers is incontinence supplies. This includes briefs (diapers that open on each side) and pull-up or pull-on type diapers. Incontinence supplies also includes disposable under pads, liners, disposable gloves and other related items.Coverage starts at Age 4: Wisconsin Medicaid
- [Advocacy for Change Institute](https://familyvoiceswi.org/advocacy-for-change/)
- [Partners in Policymaking](https://wi-bpdd.org/index.php/partners-in-policymaking/)
- [Children’s Community Options Program (CCOP)](https://www.dhs.wisconsin.gov/ccop/index.htm)
- [What's After High School](https://familyvoiceswi.org/wp-content/uploads/2018/10/WAHS-Revised-July-2018-1-.pdf)
- [Insurance Prior Authorizations](https://www.familyvoiceswi.org/wp-content/uploads/2019/06/Prior-Authorization-Revised-6-19.pdf)
- [Special Education in Plain Language](https://dpi.wi.gov/sites/default/files/imce/sped/pdf/spec-ed-plain-lang-english.pdf)
- [What is a Special Needs Trust](https://specialneedsanswers.com/what-is-a-special-needs-trust-13601)
- [Trainings](https://familyvoiceswi.org/learn/)

## Resource Library 2

- [Additional Information](https://familyvoiceswi.org/resource-library2/additional-information/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.
- [Category Hierarchy and Tabs Layout](https://familyvoiceswi.org/resource-library2/category-hierarchy-and-tabs-layout/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.
- [About KB Add-ons](https://familyvoiceswi.org/resource-library2/about-kb-add-ons/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.
- [Additional Resources](https://familyvoiceswi.org/resource-library2/additional-resources/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.
- [Quick Start Guide](https://familyvoiceswi.org/resource-library2/quick-start-guide/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.
- [Your Next Steps](https://familyvoiceswi.org/resource-library2/your-next-steps/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Id eu nisl nunc mi. Sed nisi lacus sed viverra tellus in hac habitasse platea. Quam elementum pulvinar etiam non quam lacus suspendisse faucibus. Eleifend donec pretium vulputate sapien nec.

## Testimonials

- [Testimonial 8](https://familyvoiceswi.org/testimonials/testimonial-8/)
- [Testimonial 7](https://familyvoiceswi.org/testimonials/testimonial-7/)
- [Testimonial 6](https://familyvoiceswi.org/testimonials/8322-2/)
- [Testimonial 5](https://familyvoiceswi.org/testimonials/testimonial-5/)
- [Testimonial 4](https://familyvoiceswi.org/testimonials/testimonial-4/)
- [Testimonial 3](https://familyvoiceswi.org/testimonials/testimonial-3/)
- [Testimonial 2](https://familyvoiceswi.org/testimonials/testimonial-2/)
- [Testimonial 1](https://familyvoiceswi.org/testimonials/testimonial-1/)

## Teams

- [Ashley Springer](https://familyvoiceswi.org/teams/ashley-springer/) - Ashley is devoted mother of two. Her son, Carter (4) has severe, level 3 autism. He is non-speaking and faces intellectual and behavioral disabilities. Her daughter, Audrina (7), came into the world as a NICU baby, and had challenges from a genetic deficiency. She is an advocate for her own children's health and disabilities as
- [Lynn Renner](https://familyvoiceswi.org/teams/lynn-renner/) - Lynn has been with Family Voices of Wisconsin since 2009. She is the parent of two children. Her son has cerebral palsy and epilepsy. Lynn writes our fact sheets and newsletters, coordinates Advocacy for Change and manages the Circles of Life Conference Planning Committee. lynn@fvofwi.org
- [Beth Wroblewski](https://familyvoiceswi.org/teams/beth-wroblewski-2/) - Beth joined the Family Voices of Wisconsin Team in October 2024 as Development and Operations Manager. She brings her personal experience as parent of a child with a significant healthcare needs to her work. She has focused on children and adults with disabilities and healthcare needs throughout her career. She currently serves on Governor Evers
- [Melanie Kretschmer](https://familyvoiceswi.org/teams/melanie-kretschmer/) - Melanie joined Family Voices in spring 2026, bringing a blend of professional dedication and lived experience to her advocacy. She is a strong support for children and families navigating complex care systems, with a particular commitment to those in rural communities who often face additional barriers to access and support. As the mother of two
- [Katie Cavanaugh](https://familyvoiceswi.org/teams/katie-cavanaugh/)
- [Dipesh Navsaria, MD](https://familyvoiceswi.org/teams/dipesh-navsaria-md/)
- [Brigit Frank](https://familyvoiceswi.org/teams/brigit-frank/) - Brigit has worked with Family Voices since 2014 and has developed our online trainings in addition to using her creative eye to make our materials look professional and easy to read. She is a Subject Matter Expert for the AAP in Care Coordination and has been involved in writing multiple papers concerning children with medical
- [Danielle Tolzmann](https://familyvoiceswi.org/teams/danielle-tolzmann/) - Danielle joined the Family Voices team in Spring 2022. She brings the perspectives of a parent and grandparent, affected by multiple diagnoses including autism spectrum disorder, seizure disorder, ADHD and a chromosomal micro-deletion. As Past President of the Autism Society of South-Central Wisconsin, and a current Board Member of the Respite Care Association of Wisconsin,
- [Barb Gadbois](https://familyvoiceswi.org/teams/barb-gadbois/) - Member
- [Lisa Reindl](https://familyvoiceswi.org/teams/lisa-reindl/)
- [Heidi Lehman](https://familyvoiceswi.org/teams/heidi-lehman/)
- [Bill White](https://familyvoiceswi.org/teams/bill-white/) - Member
- [Bill Schwab](https://familyvoiceswi.org/teams/bill-schwab/) - Member
- [Linda Rowley](https://familyvoiceswi.org/teams/linda-rowley/) - Member
- [Jason Cooper](https://familyvoiceswi.org/teams/jason-cooper/) - Treasurer
- [Jane Lee, MD](https://familyvoiceswi.org/teams/jane-lee-md/)
- [Ida Winters](https://familyvoiceswi.org/teams/ida-winters/)
- [Meg Steimle](https://familyvoiceswi.org/teams/meg-steimle/)
- [Patricia Erving](https://familyvoiceswi.org/teams/patricia-erving/) - Member
- [Monica Lopez](https://familyvoiceswi.org/teams/monica-lopez/) - Member
- [Pam Ironside](https://familyvoiceswi.org/teams/pam-ironside/) - Member

## Categories

- [Uncategorized](https://familyvoiceswi.org/category/uncategorized/)
- [Newsletters](https://familyvoiceswi.org/category/newsletters/)
- [News](https://familyvoiceswi.org/category/news/)

## Categories

- [Money Matters](https://familyvoiceswi.org/resource-library/category/money/)
- [Medicaid](https://familyvoiceswi.org/resource-library/category/medicaid/)
- [Health Care](https://familyvoiceswi.org/resource-library/category/health-care/)
- [Transition to Adult Life](https://familyvoiceswi.org/resource-library/category/transition/)
- [Family Support](https://familyvoiceswi.org/resource-library/category/help/)
- [Family Voices Resources](https://familyvoiceswi.org/resource-library/category/resources/)
- [Newsletters](https://familyvoiceswi.org/resource-library/category/resources/newsletters/)
- [Fact Sheets](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/)
- [Reports](https://familyvoiceswi.org/resource-library/category/resources/reports/)
- [Support at Home](https://familyvoiceswi.org/resource-library/category/help/home/)
- [Support in the Community](https://familyvoiceswi.org/resource-library/category/help/community/)
- [Children's Long-Term Support Program Series](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/childrens-long-term-support-program/) - Family-friendly materials to demystify the Children’s Long-Term Support Program and help families navigate how to apply, enroll and create your child’s plan to get the services and supports they need.
- [Mental Health Series](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/mental-health/)
- [Prior Years](https://familyvoiceswi.org/resource-library/category/resources/newsletters/prior-years/)
- [Long-Term Supports](https://familyvoiceswi.org/resource-library/category/supports/)
- [Mental Health](https://familyvoiceswi.org/resource-library/category/mental-health-2/)
- [Family Leadership](https://familyvoiceswi.org/resource-library/category/leadership/)
- [Family Support Group Series](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/family-support-group-series/)
- [Telehealth](https://familyvoiceswi.org/resource-library/category/telehealth/)
- [Video Fact Sheets](https://familyvoiceswi.org/resource-library/category/resources/video-fact-sheets/)
- [Family Leadership Series](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/family-leadership-series/)
- [Transition Planning Series](https://familyvoiceswi.org/resource-library/category/resources/print-fact-sheets/integrated-transition-planning-project-series/)
- [Años anteriores](https://familyvoiceswi.org/resource-library/category/resources/newsletters/anos-anteriores/)
- [List of Fact Sheets](https://familyvoiceswi.org/resource-library/category/list-of-fact-sheets/)

## Categories

- [General](https://familyvoiceswi.org/testimonials-category/general/)

## Add Category

- [Board Member](https://familyvoiceswi.org/team-category1/board-member/)
- [Our Team](https://familyvoiceswi.org/team-category1/our-team/)
- [Beth Wroblewski](https://familyvoiceswi.org/team-category1/beth-wroblewski/)